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. Author manuscript; available in PMC: 2021 Mar 1.
Published in final edited form as: Neuropsychol Dev Cogn B Aging Neuropsychol Cogn. 2020 Apr 9;28(2):284–307. doi: 10.1080/13825585.2020.1749228

Appendix B.

Description of measures completed by caregiver participants.

Stress Domain (based on the stress process model; Pearlin et al., 1990) Variable Description Source

Background and Context Demographics Self-report items assessing age, gender, race, marital status, highest level of education, and socioeconomic status Pearlin et al. (1990)
Primary Stressors: Objective Cognitive Status Assesses cognitive impairment in care-recipient and their level of difficulty in carrying out specific tasks Pearlin et al. (1990)
Primary Stressors: Objective Problematic Behaviors Frequency of problematic behaviors exhibited by the care-recipient over the past week Pearlin et al. (1990)
Primary Stressors: Objective Katz Index of Independence in Activities of Daily Living (ADLs) Assesses care-recipients ability to carry out functions such as bathing, dressing, and feeding Katz et al. (1963)
Primary Stressors: Objective Lawton and Brody’s Instrumental Activities of Daily Living (IADLs) Scale Assesses care-recipients ability to carry out complex activities such as grocery shopping, food preparation, and financial management Lawton and Brody (1969)
Primary Stressors: Subjective Caregiver Overload Assesses caregivers’ energy level and amount of time it takes to complete daily activities Pearlin et al. (1990)
Primary Stressors: Subjective Relational Deprivation Assesses loss related to intimacy exchange and activity deprivation due to care-recipient’s illness Pearlin et al. (1990)
Secondary Stressors: Role Strain Family Conflict Assesses level of disagreement within the family due to the seriousness/safety of the care-recipient, family members’ attitudes toward the care-recipient, and family members’ attitudes toward the caregiver Pearlin et al. (1990)
Secondary Stressors: Role Strain Financial Strain Assessed via 3 items asking caregivers to report how their total household income has changed compared to prior to the onset of care, how their monthly expenses have changed since the onset of care, and how finances work out at the end of the month Pearlin et al. (1990)
Secondary Stressors: Role Strain Occupational Strain Assesses conflict in providing care and maintaining employment Pearlin et al. (1990)
Secondary Stressors: Role Strain Modified Caregiver Strain Index Assesses strain/burn related to caregiving responsibilities across five domains: employment, financial, physical, social, and time Thornton and Travis (2003)
Secondary Stressors: Intrapsychic Strain Role Captivity Assesses the extent to which caregivers feel trapped as a result of their role Pearlin et al. (1990)
Secondary Stressors: Intrapsychic Strain Loss of Self Assesses loss of identity due to caregiving role Pearlin et al. (1990)

Domain Variable Description Source

Depression Center for Epidemiological Studies Depression Scale Self-report questionnaire assessing depressive symptoms within the past week Radloff (1977)
Social Support ENRICHD Social Support Inventory Questionnaire assessing perceived availability of emotional, informational, and practical support. Mitchell et al. (2003)
Coping Cope Inventory Self-report questionnaire asking participants to report how they cope in stressful situations Carver et al. (1989)
Perceived Stress Perceived Stress Scale Questionnaire assessing situational stress appraisal within the past month Cohen et al. (1983)
Working Memory N-back Test Decide whether presented letter is the same as 2- or 3- trials back Kirchner (1958), Stoet (2010, 2017)
Episodic Memory (immediate and delayed recall) WMS-III Word-Recall Subtest Number of words recalled across 5 trials of a word list Wechsler (1997)
Attention Stroop Color-Word Interference Test Respond to color of ink that word is printed in Stoet (2010, 2017)
Processing Speed WAIS-IV Digit Symbol Test Use a code legend to indicate the correct symbol underneath each digit Weschler (2008)
Processing Speed Pattern Comparison Make same/different judgments of pairs of line patterns Salthouse and Babcock (1991)
Processing Speed Letter Comparison Make same/different judgments of pairs of letter strings Salthouse and Babcock (1991)
Executive Functioning Connections Connect circles in order (e.g., numerical order, alphabetical order, alternating between numerical and alphabetical order, and alternating between alphabetical and numerical order) Salthouse et al. (2000)
Visuospatial Processing Mental Rotation Task Choose rotated stimulus that matches target stimulus Shephard and Metzler (1971), Stoet (2010, 2017)
Implicit Memory Word-Stem Completion Task Phase I (study phase): Read word-list, construct visual image of each word, and rate the pleasantness of the image. Phase II (test phase): fill in word-stems Roediger et al. (1991)