Table 1.
Self-reported variables and instruments at inclusion, 6 and 12 months
| Variable | Instrument | Items | Scalea |
|---|---|---|---|
| Patients’ self-reported outcomes | |||
| Experience of mental health and functioning | Basis-24 [47], The Behavior and Symptom Identification scale | 24 | L-5 |
| Quality of life | ReQoL-10 [57], The Recovering Quality of Life questionnaire | 10 | L-5 |
| Perceived criticism and warmth from relative | PCW [58], Perceived criticism and warmth | 5 | L-10 |
| Experienced shared decision making | CollaboRATE [59] | 3 | L-10 |
| General satisfaction | MANSA [60], the Manchester Short Assessment of Quality of Life – first item | 1 | L-7 |
| Experienced burden of mental health problems | IFIP trial question | 1 | L-7 |
| Relatives’ self-reported outcomes | |||
| Experienced support | CWS v2 [48], Carer Well-being and Support questionnaire, short version part B | 18 | L-4 |
| Experience of caregiving | ECI [61], The Experience of Care-giving inventory questionnaire | 66 | L-5 |
| Caregiver quality of life | CarerQoL [62], The Care Related Quality of Life questionnaire | 7 | L-3 |
| Experienced shared decision making | An instrument inspired by CollaboRATE [59] | 3 | L-10 |
| Expressed emotion | FQ [63], The Family questionnaire | 20 | L-4 |
a L Likert scale and number of steps for each item