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SCD includes Hb SS, Hb S/beta thalassemia and Hb SC genotypes. Abbreviations: ACMG, American College of Medical Genetics; CSSCD, Cooperative Study of Sickle Cell Disease; HHS, Health and Human Services; HRSA, Health Resources and Services Administration; NBS, newborn screening; NHLBI, National Heart, Lung and Blood Institute; NIH, National Institutes of Health; RUSP, Recommended Uniform Screening Panel.
