Table 1.
Clinical experience (n=21) | |
Main clinical practice* | |
Private teaching hospital | 1 (4.8) |
Private hospital | 0 |
Public teaching hospital | 18 (87.5) |
Public non-teaching hospital | 0 |
Research centre | 6 (28.6) |
Duration of FD clinical experience, years | |
Mean (SD) | 15.5 (7.5) |
0–10 | 6 (28.6) |
11–20 | 11 (52.4) |
21–30 | 4 (19.0) |
Number of patients with FD managed | |
Mean (SD) | 99 (81) |
1–50 | 4 (19.0) |
51–100 | 12 (57.1) |
101–200 | 3 (14.3) |
>200 | 2 (9.5) |
Patient summary† | |
Male | 847 (40.7) |
Female | 1232 (59.3) |
Classical FD | 1341 (64.5) |
Non-classical FD | 738 (35.5) |
Data are shown as number (%) of respondents unless otherwise stated.
*Respondents could select more than one option.
†Patient n (%) values are estimates, derived from total patient numbers and estimated sex and FD-type breakdown reported by each panellist.
FD, Fabry disease; PREDICT-FD, PRoposing Early Disease Indicators for Clinical Tracking in Fabry Disease.