Table 3.
Study | Stigma Outcome/ Dependent Variable |
n (male %) |
Measurement Tool | Score Range | Validity | Reliability | Prevalence (%)/ Level of Stigma (Mean, SD) |
Explored Associations with Correlates |
---|---|---|---|---|---|---|---|---|
CRD—Asthma | ||||||||
Andrews et al. (2013) | Perceived stigma | 72 (26.3% male) | 19-item stigma scale for mental health | 0 to 100 (%) | Pre-validated: details NR | α = 0.89 | Perceived stigma: 86% (51% low stigma; 21% medium stigma; 14% high stigma; 14% no stigma) |
Asthma control/morbidity (d = 0.820, p = 0.02)
Physical health score (r = −0.41, p = 0.001) Mental health score (r = −0.23, p = 0.045) |
CVD—Stroke | ||||||||
Sarfo et al. (2017) | Perceived stigma (personal stigma; family stigma; community/social stigma) |
200 (52.5%) | 8-item Stigma Scale for Chronic Illness (SSCI-8) | 8 to 40 | Pre-validated: details NR | NR | Perceived personal stigma: 79% (13.7, SD 5.7) Perceived family stigma: 63% (11.9, SD 4.6) Perceived community stigma: 62% (11.4, SD 4.4) |
Perceived personal stigma vs: No family history of stroke (β = 1.58; p = 0.03) Depression (NS) Employment (Employed vs. Unemployed) (NS) Stroke severity (NS) HRQoL (NS) |
Diabetes Type 2 | ||||||||
Gredig et al. (2017) | Perceived stigma and experienced stigma |
3347 (54.8% male) | 33-item Experienced Stigma and 26-item Perceived Stigma (self-developed questionnaire) | 0 to 100 (%) | Pre-validated: construct validity | NR | Experienced stigma: 68.5% Perceived stigma: 84.4% |
Experienced stigma vs: Self-esteem (β = −0.067; p = 0.002) Psychological distress (β = 0.166; p < 0.001) Depressive symptoms (β = 0.156; p < 0.001) Perceived social support (β = −0.073; p < 0.002) Perceived stigma vs: Self-esteem (β = −0.176; p < 0.001) Psychological distress (β = 0.367; p < 0.001) Depressive symptoms (β = 0.331; p < 0.001) Perceived social support (β = −0.220; p < 0.001) |
Kato et al. (2017) | Self (internalized)-stigma | 209 (80.4% male) | 39-item self-stigma scale in Japanese (SSSJ) | 0 to 117 | Pre-validated: details NR | α = 0.96 | Mean self/internalized stigma: 72.5, SD 6.38 | Self-esteem and social participation (d = 0.79, p < 0.001) |
Lee et al. (2015) | Perceived stigma | 125 (68% male) | 8-item questionnaire to assess perceived stigma (self-developed questionnaire) | 0 to 100% | NR | NR | Perceived stigma: 12% |
Diabetes affects work (d = 0.41; p < 0.05)
Diabetes affects work prospect (d = 0.39; p < 0.05) |
Cancer—Miscellaneous | ||||||||
Cho et al. (2013) | Perceived cancer stigma (attitudes towards cancer) and experienced ancer stigma (social discrimination) |
466 (46.1% male) | 12-item questionnaire to assess cancer stigma (8-item attitudes towards cancer, and 4-items social discrimination) (self-developed questionnaire) | 0 to 100% | NR | Attitudes towards Cancer: impossibility of recovery (α = 0.75) and stereotypes (α = 0.76) Social discrimination (α = 0.89) |
Perceived and experienced cancer stigma: 30% [Impossibility of recovery: cancer impossible to be treated (30.8%), difficult to be healthy again (40%), cannot be socially active because of cancer (36.2%)] [Stereotypes: cancer patients recognized by appearance (31.3%), have difficult time having sexual intimacy (31.3%)] [Social discrimination: avoided by friends (10.1%), avoided by neighbors (8.2%), problems with family (10.5%), discrimination from employers and coworkers (5%)] |
Negative attitude towards cancer (Ref: positive attitude) vs: Depression (OR: 2.72, p < 0.05) Experience of discrimination (Ref: No) vs: Depression (OR: 2.27, p < 0.05) |
Park et al. (2010) | Experienced stigma (discrimination) | 748 (59.0% male) | Single-item indicator for experienced stigma and 10-items for types of discrimination experienced (self-developed questionnaire) | 0 to 100% | NR | NR | Experienced discrimination in the workplace: 5.6% [reduction in salary (27.1%), loss of opportunity to display ability (13.6%), pressure to quit or change job (13.6%), difficulty of revealing cancer diagnosis (11.9%)] | Experienced discrimination vs: Disability (OR: 4.82, CI: 2.07–11.20) Change in employment status (NS) Unemployed (NS) |
Cancer—Lung | ||||||||
Brown et al. (2014) | Perceived health-related stigma (lung cancer stigma) |
149 (25% male) | 31-item Cataldo Lung Cancer Stigma Scale (CLCSS) | 31 to 124 | Pre-validated: construct validity | α = 0.96 | Mean perceived stigma level: 75.9, SD 18.20 |
QoL (β = −0.136, p = 0.015)
Anxiety (r = 0.418, p < 0.001) Depression (r = 0.562, p < 0.001), |
Cataldo et al. (2013) | Perceived health-related stigma (lung cancer stigma) |
144 (26% male) | 31-item Cataldo Lung Cancer Stigma Scale (CLCSS) | 31 to 124 | Pre-validated: construct validity | α = 0.97 | Mean perceived stigma level: 75.7, SD 18.30 |
Symptom severity (β = 0.140, p < 0.05)
Anxiety (r = 0.413; p < 0.001) Depression (r = 0.559, p < 0.001) Symptom severity (r = 0.483, p < 0.001) |
Gonzalez et al. (2012) | Perceived stigma | 95 (41.1% male) | 24-item Social Impact Scale (SIS) | Total score SIS (0 to 80) |
Pre-validated: details NR | α = 0.81 | Mean total SIS score (perceived stigma): 42.9, SD 11.87 | Depression (β = 0.19, p = 0.03) |
Cancer—Prostate | ||||||||
Wood et al. (2017) | Self/internalized stigma and social stigma |
85 (all male) | 24-item Social Impact Scale (SIS): internalized shame/stigma, social rejection, financial insecurity, social isolation | Internalized shame/stigma (5 to13) Social rejection (9 to 20) Social isolation (7 to 23) Financial insecurity (3 to 12) |
Pre-validated: details NR | Internalized shame (α = 0.73), social rejection (α = 0.84), financial insecurity (α = 0.85), social isolation (α = 0.92) | SIS internalized shame: 7, SD 2.42 SIS social rejection: 10.63, SD 2.71 SIS social isolation: 9.61, SD 3.80 SIS financial insecurity: 4, SD 1.48 |
SIS internalized shame vs. QoL (β = −0.15, p < 0.001) SIS social rejection vs. QoL (β = 0.18, p < 0.001) SIS social isolation vs. QoL (β = −0.36, p < 0.001) SIS financial insecurity vs. QoL (β = −0.34, p < 0.001) |
NR—not reported; NS—non-significant association; α—Cronbach’s alpha; QoL—quality of life.