Table 1.
Caregiver and survivor characteristics
| Participants, 3 months | Missing values | Participants, 12 months | Missing values | |
|---|---|---|---|---|
| Caregivers, n | 320 | 326 | ||
| Age in years, mean (SD) | 62.5 (13.3) | 16 | 62.8 (12.9) | 18 |
| Female sex | 193 (60.3) | 21 | 208 (63.8) | 25 |
| Relationship to survivor | 1 | 1 | ||
| Spouse/partner | 198 (61.9) | 212 (65.0) | ||
| Adult child | 101 (31.6) | 88 (27.0) | ||
| Other | 20 (6.3) | 25 (7.7) | ||
| Highest education | 13 | 12 | ||
| Primary school | 69 (21.6) | 59 (18.1) | ||
| Secondary school | 129 (40.3) | 129 (39.6) | ||
| University | 109 (34.1) | 126 (38.7) | ||
| Currently working | 120 (37.5) | 22 | 135 (41.4) | 14 |
| HADS anxiety score | 13 | 13 | ||
| Mean (SD) | 4.9 (4.0) | 5.1 (4.2) | ||
| Score ≥ 8 | 71 (23.1) | 78 (24.9) | ||
| HADS depression score | 12 | 13 | ||
| Mean (SD) | 3.1 (3.5) | 3.2 (3.3) | ||
| Score ≥ 8 | 37 (12.1) | 34 (10.9) | ||
| Survivors, n | 368 | 383 | ||
| Age at admission in years, mean (SD) | 71.9 (12.0) | 71.0 (12.5) | ||
| Female sex | 158 (42.9) | 150 (39.2) | ||
| Highest education | 174 | 195 | ||
| Primary school | 61 (31.4) | 54 (28.7) | ||
| Secondary school | 75 (38.7) | 76 (40.4) | ||
| University | 58 (29.9) | 58 (30.9) | ||
| Diagnosis | ||||
| Transient ischaemic attack | 109 (29.6) | 114 (29.8) | ||
| Ischaemic stroke | 226 (61.4) | 234 (61.1) | ||
| Intracerebral haemorrhage | 33 (9.0) | 35 (9.1) | ||
| Stroke severitya | ||||
| NIHSS, median (IQR) | 3 (1–5) | 3 (1–5) | ||
| Mild (NIHSS ≤ 3) | 161 (62.2) | 163 (60.6) | ||
| Moderate (NIHSS 4–10) | 74 (28.6) | 73 (27.1) | ||
| Severe (NIHSS > 10) | 24 (9.3) | 33 (12.3) | ||
| mRS score, median (IQR) | 1 (0–2) | 77 | 1 (0–2) | 50 |
| Discharge destination | ||||
| Home or rehabilitation | 305 (82.9) | 329 (85.9) | ||
| Nursing home | 51 (13.9) | 39 (10.2) | ||
| Other | 12 (3.3) | 15 (3.9) | ||
| HADS anxiety score | 40 | 33 | ||
| Mean (SD) | 4.9 (4.3) | 4.4 (4.2) | ||
| Score ≥ 8 | 81 (24.7) | 77 (22.0) | ||
| HADS depression score | 35 | 28 | ||
| Mean (SD) | 4.4 (4.4) | 4.3 (4.1) | ||
| Score ≥ 8 | 70 (21.0) | 80 (22.5) |
Values expressed as n (%) unless otherwise stated
SD standard deviation, HADS Hospital Anxiety and Depression Scale, NIHSS National Institutes of Health Stroke Scale, IQR interquartile range, mRS modified Rankin Scale
aStroke survivors only (ischaemic stroke/intracerebral haemorrhage)