Table 1.
Characteristics of five-year AYA cancer survivors overall and according to diagnosis year, SEER 1975-2011
| Characteristics | Full sample, No. (%) | 1975-1984, No. (%) | 1985-1994, No. (%) | 1995-2004, No (%) | 2005-2011, No. (%) |
|---|---|---|---|---|---|
| Years follow-up, median (IQR) | 8 (4-16) | 29 (20-32) | 20 (17-23) | 10 (8-12) | 3 (2-5) |
| Sex | |||||
| Female | 176994 (62.5) | 20246 (63.4) | 30070 (61.9) | 64410 (62.4) | 62268 (62.8) |
| Male | 105975 (37.5) | 11697 (36.6) | 18520 (38.1) | 38823 (37.6) | 36935 (37.2) |
| Age at diagnosis, y | |||||
| 15-19 | 19168 (6.8) | 2385 (7.5) | 2806 (5.8) | 6671 (6.5) | 7306 (7.4) |
| 20-24 | 31118 (11.0) | 4220 (13.2) | 5170 (10.6) | 10514 (10.2) | 11214 (11.3) |
| 25-29 | 50007 (17.7) | 6660 (20.8) | 8853 (18.2) | 17168 (16.6) | 17326 (17.5) |
| 30-34 | 73896 (26.1) | 8572 (26.8) | 13223 (27.2) | 27141 (26.3) | 24960 (25.2) |
| 35-39 | 108780 (38.4) | 10106 (31.6) | 18538 (38.2) | 41739 (40.4) | 38397 (38.7) |
| Race | |||||
| White | 232517 (82.2) | 27675 (86.6) | 41006 (84.4) | 84399 (81.8) | 79437 (80.1) |
| Black | 24099 (8.5) | 2394 (7.5) | 3646 (7.5) | 9111 (8.8) | 8948 (9.0) |
| Other | 21775 (7.7) | 1587 (5.0) | 3333 (6.9) | 8055 (7.8) | 8800 (8.9) |
| Unknown | 4578 (1.6) | 287 (0.9) | 605 (1.2) | 1668 (1.6) | 2018 (2.0) |
| Summary stage | |||||
| Localized | 148123 (52.3) | 17267 (54.1) | 26043 (53.6) | 54221 (52.5) | 50592 (51.0) |
| Regional | 56929 (20.1) | 5618 (17.6) | 9157 (18.8) | 21228 (20.6) | 20926 (21.1) |
| Distant | 19439 (6.9) | 1742 (5.5) | 2816 (5.8) | 6942 (6.7) | 7939 (8.0) |
| Unstaged | 56602 (20.0) | 6941 (21.7) | 10427 (21.5) | 20681 (20.0) | 18553 (18.7) |
| Unknown | 1876 (0.7) | 375 (1.2) | 147 (0.3) | 161 (0.2) | 1193 (1.2) |
| Cancer type | |||||
| Leukemia | 8634 (3.1) | 586 (1.8) | 1111 (2.3) | 3235 (3.1) | 3702 (3.7) |
| Non-Hodgkin lymphoma | 15439 (5.5) | 1297 (4.1) | 2342 (4.8) | 6061 (5.9) | 5739 (5.8) |
| Hodgkin lymphoma | 20842 (7.4) | 2947 (9.2) | 3960 (8.1) | 7177 (7.0) | 6758 (6.8) |
| Central nervous system | 10212 (3.6) | 1067 (3.3) | 1824 (3.8) | 3733 (3.6) | 3588 (3.6) |
| Osseous and chondromatous | 3504 (1.2) | 375 (1.2) | 600 (1.2) | 1317 (1.3) | 1212 (1.2) |
| Soft tissue sarcomas * | 9498 (3.4) | 1244 (3.9) | 1841 (3.8) | 3519 (3.4) | 2894 (2.9) |
| Germ cell | 30312 (10.7) | 3306 (10.3) | 5599 (11.5) | 11056 (10.7) | 10351 (10.4) |
| Melanoma/skin | 37646 (13.3) | 4401 (13.8) | 7087 (14.6) | 14119 (13.7) | 12039 (12.1) |
| Thyroid | 39014 (13.8) | 3623 (11.3) | 5180 (10.7) | 13600 (13.2) | 16611 (16.7) |
| Head and neck | 7061 (2.5) | 910 (2.8) | 1327 (2.7) | 2523 (2.4) | 2301 (2.3) |
| Trachea, lung, and bronchus | 2175 (0.8) | 315 (1.0) | 413 (0.8) | 743 (0.7) | 704 (0.7) |
| Female breast | 43397 (15.3) | 4983 (15.6) | 7811 (16.1) | 16188 (15.7) | 14415 (14.5) |
| Kidney | 5227 (1.8) | 282 (0.9) | 570 (1.2) | 1776 (1.7) | 2599 (2.6) |
| Bladder | 3736 (1.3) | 702 (2.2) | 860 (1.8) | 1295 (1.3) | 879 (0.9) |
| Cervix/uterus | 21442 (7.6) | 3229 (10.1) | 4155 (8.6) | 7693 (7.5) | 6365 (6.4) |
| Colorectal | 10549 (3.7) | 952 (3.0) | 1438 (3.0) | 4043 (3.9) | 4116 (4.1) |
| Other | 14281 (5.0) | 1724 (5.4) | 2472 (5.1) | 5155 (5.0) | 4930 (5.0) |
*
Excludes Kaposi sarcoma