Table 2.

Focus Group Questions

Trust in privacy in underrepresented groups facilitator guide
Topic and questions	Optional probes
Research
1. When you hear the word “research” what comes to mind?	a. If familiar with health studies, what types of health studies are you familiar with? b. Please explain more on __________? c. Could you please provide an example of ______________? d. Why do you think so?
Trust
2. When you hear the word “trust” what comes to mind? 3. What would make you more likely to trust researchers? 4. What would make you less likely to trust researchers?
Privacy
5. When you hear the word “privacy” what comes to mind?	a. In general, how do you feel about private health information being collected and stored? b. In your opinion, what are researchers doing to protect collected health information? c. In your opinion, what are researchers not doing to protect collected health information? d. What else can researchers do to protect private health information?
Confidentiality
6. In general, what concerns do you have about health research and what concerns, if any, about researchers?
Research participation
7. In your opinion, what do you think are the benefits of participating in health studies? 8. Are there harms? 9. What would make you more likely to participate in research?	a. Where would you go to participate in health research?
Concluding question
10. We covered a lot during this session. Is there something that you wanted to say earlier but did not get a chance to?