TABLE 2.
Questionnaires administered and results.
| Questionnaire | Construct measured | Results |
| PedsQLTM 4.0 | Youth’s quality of life (parent rated) | 62% satisfied |
| Physical | 93.75% | |
| Emotional | 45% | |
| Relation with peers | 50% | |
| Studies | 60% | |
| Youth’s quality of life (self-rated) | 56.25% satisfied | |
| Physical | 90% | |
| Emotional | 35% | |
| Relation with peers | 45% | |
| Studies | 55% | |
| FQoL | Family quality of life | |
| Family interaction | 4.33/5–satisfied | |
| Parenting | 4.00/5–satisfied | |
| Emotional well-being | 3.25/5–neutral | |
| Physical/Material well-being | 4.20/5–satisfied | |
| Disability-related support | 2.75/5–neutral | |
| DASS-21 | Mother’s mental health | Invalid |
| Parenting style and dimensions questionnaire | Self-reported parenting style | Authoritative |
| Parenting sense of competence | Self-reported parenting efficacy and satisfaction | High |
| HIBOU | Sleep issues screening | 5/27 (Normal) |