Table 1.
Characteristics of Spanish-Speaking Caregivers and Children (n = 28)
| Characteristic | N (%)/Median (Interquartile Range) |
|---|---|
| Caregiver characteristics | |
| Caregiver role | |
| Mother | 22 (79) |
| Father | 4 (14) |
| Friend | 2 (7) |
| Caregiver age (y), median (interquartile range)* | 34 (8) |
| Caregiver education level* | |
| 6th grade or less | 5 (22) |
| 7th–8th grade | 6 (26) |
| 9th–12th grade | 9 (39) |
| Some college | 3 (13) |
| Caregiver country of origin* | |
| Mexico | 12 (52) |
| Guatemala | 4 (17) |
| El Salvador | 3 (13) |
| Honduras | 2 (9) |
| US/Puerto Rico | 2 (9) |
| Number of years in US, median (interquartile range)* | 15 (6) |
| Household characteristics | |
| Number in household | 5 (3–7) |
| Number of children in household | 3 (1–5) |
| Annual household income, median (interquartile range) ($) | 18,720 (11,400) |
| Child characteristics | |
| Child sex | |
| Female | 9 (39) |
| Male | 14 (61) |
| Child age, years, median (interquartile range) | 10 (8) |
| Number of appointments for child at medical center | |
| First appointment | 5 (22) |
| 2 to 5 | 5 (22) |
| 6 to 30 | 4 (17) |
| Greater than 30 | 9 (39) |
| Child ever admitted to hospital | 13 (57) |
| Specialty services involved in child's care | |
| Neurology | 6 (26) |
| Gastroenterology | 4 (17) |
| Pulmonology | 3 (13) |
| Endocrinology | 3 (13) |
| Urology | 3 (13) |
| Feeding team | 3 (13) |
| Nutritionist | 3 (13) |
| Other† | 13 (57) |
| Health information technology access and interest | |
| Access to computer/tablet | 15 (65) |
| Access to Internet at home | 20 (87) |
| Access to smartphone | 20 (87) |
| Interest in patient portal | 19 (83) |
⁎
Questions were asked only of adult identifying as primary caregiver; n = 23 for these items.
†
Caregivers also reported the following specialty care for 2 or fewer children: orthopedics, rehabilitation medicine, otorhinolaryngology, genetics, dermatology, allergy, nephrology, speech therapy, physical therapy, audiology. Total >23 specialty services because caregivers reported all applicable services and most children had >1 service involved.