Table 3.
Overarching theme | Frequency (%) | Sub-theme | Frequency | Examples |
---|---|---|---|---|
Caregiver stressor | 47 (25.3) | Financial | 4 | • “Insurance doesn't cover services, paying out of pocket” |
Health | 9 |
• “Inavalibility of prescriptions” • “Keeping them from being exposed” |
||
Concerns for other children | 7 |
• “Sibling 3 years old also home” • “Second child is showing signs of ASD now as sell” |
||
Parental stressors | 31 |
• “Having to work at the same time as having to keep my son busy with learning activities” • “Losing my job because I have no one to watch our two children” |
||
Person with ASD stressor | 77 (41.4) | Behavior concerns | 16 |
• “Regression and aggression” • “he wont stop eating” |
Isolation | 21 |
• “Family being together in a small apartment all day, every day is hard for even non-ASD family members” • “He needs the interaction with the people in his office” |
||
Change in routine | 44 |
• “He is in a specialized group home and on no kind of schedule.” • “No current routine need one set up!!” |
||
Service stressor | 66 (35.5) | School absence | 26 |
• “Just trying to work from home and figure out how to continue her education as best as I can without being a teacher” • “Her education slipping and becoming further behind” |
ABA or therapeutic concerns | 44 |
• "Lack of services (no ABA, no speech, no special education in person)" • “Missing essential therapies due to distancing” |
||
Unclassifiable | 13 |
• “Depression” • “Fear ‘normal’ will never return” • “Uncertainty” |
Frequencies of sub-themes do not sum to the frequency of the overarching theme because each free-response can have more than one sub-theme. Syntactical errors in responses are direct verbatim from respondents