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. 2020 Oct 8;8:572933. doi: 10.3389/fped.2020.572933

Table 1.

Study descriptions and details.

Author(s) Year of publication Aim of Study Methodology Findings summary
Back et al. 2016 Examine the approaches to building resilience in palliative care physicians—clinician resilience skills & workplace factors Literature review and stakeholder interviews Introduced a structural model of individual skills and system construction that support professional resilience
Cortezzo et al. 2019 Study of birth planning for life-limiting fetal diagnosis from both the patient and parents' perspectives Mixed methods, quantitative-descriptive & univariate analysis; qualitative-thematic analysis Proposed eliciting parental preferences for greater participation and decision making. Physician comfort levels were adequate, but found that time limitations made communication aspects with birth planning was most unfeasible aspect
Cortezzo et al. 2015 Explore the practices and perceptions of end-of-life care in NICU—examined patient and provider experiences Survey study- explorative, description cross-sectional evaluation Found debriefing/closure conferences, bereavement support, and education provision was variable and suboptimal at times. Value of formal palliative care teams rather than individual consultants ascertained.
Forster and Hafiz 2015 Explore the coping strategies and perceptions of support available to professionals encountering pediatric death Qualitative: multidisciplinary professional interviews Personal coping strategies, peer support, family support, spiritual beliefs, relational efficacy when caring for the dying child and family all improved coping
Hamric 2014 Illustrate ethical issues and moral distress associated with end-of-life issues that occur in the NICU which impact perinatal palliative care provision. Case study Expounded ethical climate building with debriefing, improving communication, multidisciplinary care conferences, and resilience factors
Hutti et al. 2016 Evaluate nurses reactions to caregiving for patient experiencing fetal demise Recorded group discussions structured by Swanson's Theory of Caring was analyzed Risks for compassion fatigue were revealed. Coping strategies and interventions based on latest research was presented which included debriefing, mentoring, more perinatal bereavement education, and self-care practices were implicated.
Jonas-Simpson et al. 2016 Explore thematic patterns of obstetrical or neonatal nurse's grief experiences to perinatal death Qualitative study: interpretive phenomenology Thematic patterns included: Growth and transformation emerging with anguish and grief, collegial supports, education, aspects of reciprocal mentorship, the intrinsic value of compassionate caregiving
Kamal et al. 2016 Examine the prevalence and predicting factors associated with burnout rates in hospital and palliative care clinicians in the U.S. Quantitative: Survey study and statistical analysis Higher rates of burnout correlated with emotional exhaustion and depersonalization, working at smaller organizations, extended work hours, age < 50, and working weekends. Activities related to interpersonal relationships and vacation use were associated with less burnout rates.
Klein 2009 Study issues of ethical dilemma and moral distress in pediatric palliative care—infants born with severe life-limiting anomalies Case studies Prognostication challenges, cultural, and social factors can cause moral distress in parents and palliative staff. Beliefs and aspects regarding the suffering of the infant can create emotional dilemma. Ethics and palliative care collaboration can be supportive to staff and caregivers.
Kilcullen and Ireland 2017 Present facilitators and barriers to palliative care provision in an Australian NICU Qualitative: Thematic analysis of semi-structured interviews Facilitators of the provision of palliative care included: cultural awareness, experienced and proficient mentors and supportive staff, clinical skills and knowledge, personal knowledge of one's own values, morals, & beliefs, emotional & communication skills, and knowledge of bereavement practices. Barriers to the provision of palliative care included: lack of education/inservices, workspace environment, parents' inaccessibility to infant, nurses' own grief, and included input into development of policies and procedures.
McCloskey and Taggart 2010 Probe the occupational stressors of pediatric palliative care nurses Qualitative focus group discussions: thematic content analysis Workload demands included: emotional, ethical, constraints to care delivery, lack of resources, documentation, community misconceptions, maintaining relationships with patient & family, and cultivating autonomy within the profession
Mehta et al. 2016 Study aspects of palliative care teams- pilot study of model for team resilience Quantitative- Resiliency model testing with physicians Team building measured a feasible reduction in perceived stress, and improved the perspective taking of the others in the team
Mills et al. 2017 Evaluate perceptions, education, and practices related to self-care in palliative nurses and medical professionals in Australia Survey studies Self-care was regarded as important by most. Many had not practiced self-care and also denied having any education on self-care. A large portion of those reported that self-care plans would be considered if training was provided.
Mills et al. 2018 Explore the meaning and practice of self-care in palliative nurses and physicians Qualitative content analysis of semi-structured interviews A practice of self-care contributed to a better capacity to care for others. Self-care practices in both occupational and personal settings is necessary.
Facilitators of self-care practices included supportive environments, self-assessment, prioritization, and an ongoing planning process. Barriers included overwhelming workload & excessive busyness, stigma against self-care at the workplace, low self-worth or self-criticism, and lack of planning.
Perez et al. 2015 Examine the barriers and facilitators of resiliency in palliative care clinicians Qualitative: content analysis of semi-structured interviews Identified stressors, coping strategies, and training needs. Stressors included limited resources & cost-cutting, conflicting interdisciplinary expectations, increased caseloads, intensity of the cases, boundary setting, personal & professional limitations, competing demands from administrative & documentation activities, patients, & staff. Coping strategies included personal self-care, emotional & physical distancing from work off the clock, and social & emotional supports. Training needs included mind-body skills, stress education, cognitive stress management skills, and brief coping strategies to implement in real time.
Profit et al. 2014 Explore aspects of burnout and resilience in NICU Cross-sectional surveys NICUs with higher levels of burnout were correlated with a reduced teamwork climate, safety climate, job satisfaction, perceptions of management, and working conditions. A resilient culture was show to enhance safety and quality of care.
Sanso et al. 2015 Determine the relationship between self-care & awareness and development of burnout, compassion fatigue, and coping with death in palliative care professionals Quantitative- survey study Self-care and self-awareness improved coping with death and compassion satisfaction, less burnout and compassion fatigue. The data collection after the spiritual training exercises did not have those desired effects.
Dev et al. 2018 Evaluate the relationship between barriers to compassion and burnout in nurses. Quantitative study: survey Barriers to compassion, contributors to burnout included workload, clinical barriers, practice of self-compassion, encounters with patient and families
Weitraub et al. 2016 Contrast physician burnout, compassion fatigue, and compassion satisfaction Quantitative study: linear regression analysis Overlapping of burnout and compassion fatigue found. Impacts emotional well-being and professional performance of neonatologists. Self-identifying as being Hispanic debriefing and utilization of pediatric palliative care services resulted in compassion satisfaction.
Wright et al. 2011 Examine the facilitators and barriers to the provision of end-of-life care in the NICU settings from the perspectives of neonatal nurses. Quantitative: Questionnaire survey study Five barriers were identified as: inability to express values and beliefs regarding palliative care, environmental constraints, engagement in technology, demands from parents, and lack of education. Eight facilitators identified as: staff support, involvement of parents in decision making, support from medical team when palliative care was implemented, parents informed of options, staffing, time allotment with dying baby, policies/guidelines that supported palliative care, and available counseling.
Zwack and Schweitzer 2013 Analyze stakeholder interviews regarding aspects of burnout and resilience Qualitative study: Concept analysis Both attitudes and strategies (social, mental, and physical) assisted physicians' success to augment decision making, coping, and promoting resilience in others.