Table 3.

analysis of the family experiences when children receive palliative care at home

Categories	Text concerning home-based palliative care – the experiences of parents, children and siblings			Text concerning challenges and unmet needs at home
Themes	Parents’ experiences	Children’s experiences	Siblings’ experiences	Challenges	Needs	Importance of support and respite care
Sub-themes	Place of care. Positive consequences of home care.	Wanted to stay at home. Physician showed interest in their person. Need for information without parents presence.	Difficult emotions. Home care made a normal life possible.	Importance of support. Lack of competence and organizations. Lack of privacy. Lack of trust but also satisfaction with health care providers. Work and economy	Communication with health care professionals. Heavily workload. Fighting for resources.	Respite care impotent for parents to cope. Pediatric palliative care teams.