Table 1.
Description of representative cardiovascular disease registries. LAAO: Left Atrial Appendage Occlusion Registry; PCI: percutaneous coronary intervention; Afib: atrial fibrillation; TAVR: transcatheter aortic valve replacement; HCM: hypertrophic cardiomyopathy; CVD: cardiovascular disease
| REGISTRY | GOVERNANCE | DESCRIPTION | SIZE/RECORDS | SUB-REGISTRIES |
|---|---|---|---|---|
| National Cardiovascular Data Registry (NCDR) | American College of Cardiology | Composed of 10 registries: 8 inpatient/procedure based and 2 outpatient based | > 2,400 hospitals and 8,500 providers with > 60 million patient records | Examples include CathPCI, LAAO, Afib Ablation, and the Diabetes Collaborative Registry |
| Society of Thoracic Surgeons (STS) National Database | Society of Thoracic Surgeons | Clinical outcomes for patients who undergo cardiothoracic surgery | Includes > 90% of adult cardiac surgical centers and > 6.9 million surgical cases | Examples include Adult Cardiac Surgery Database, General Thoracic Surgery Database |
| Transcatheter Valve Therapy (TVT) | Society of Thoracic Surgeons/American College of Cardiology | Focused on patients who undergo transcatheter valve replacement and repair procedures such as TAVR | > 650 sites reporting | n/a |
| Get With The Guidelines (GWTG) | American Heart Association | Reports patient outcomes on a number of cardiovascular conditions, such as stroke, heart failure, and atrial fibrillation | > 2,000 hospitals | GWTG Stroke, GWTG Heart Failure, GWTG COVID-19 CVD Registry |
| Hospital Compare | Center for Medicare and Medicaid Services | Public reporting comparing hospitals based on overall star rating and certain quality measures | > 4,000 Medicare-certified hospitals | n/a |
| Hypertrophic Cardiomyopathy Registry | University of Virginia/University of Oxford | Identifies markers that predict development of complications in patients with HCM | 44 active sites; 2,750 patients enrolled | n/a |