Statements	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree
a. At our meetings with the researchers:
The purpose of the meetings was clearly explained.
I had enough information to contribute to the topics being discussed.
I was clear about my role and what was expected of me
I had clarity on the role of other team members
I was able to express my views freely.
I felt that my views were heard.
A wide range of views on the topic were expressed.
I felt that the input provided will be considered by the team.
The meetings achieved their stated objectives.
b. Overall views when thinking about my collaboration with this team:
My insights and comments influenced the decisions of the team.
I was able to contribute and share my personal experience with this team.
I felt adequately prepared for my role.
I understand how the input from this collaboration will be used.
I think this collaboration will make a difference.
As a result of my collaboration with this team, I am better informed about the healthcare system and issues that can affect my own care
As a result of my collaboration with this team, I have greater trust in research and the efforts made to improve our healthcare system
Overall, I was satisfied with my collaboration with this team.
My collaboration with this team was a good use of my time.
c. Logistics, Expenses & Compensation:
My schedule and timeframes were considered when the team meetings were scheduled.
The research team worked with me to accommodate my challenges and ensure that it is easy for me to participate.
I feel the support I needed for my travels were available.
I feel the support I needed for my child care was available.
I feel the support I needed for my travels were available.
I feel the support I needed for my accommodations were available.
I feel the support I needed for my meals were available.
I feel the support I needed towards my participation remuneration / compensation was available.