| Adams (2011)[41] |
Bangladesh |
Dhaka |
To design, implement and evaluate a low-cost intervention, to address the feeding difficulties of children with moderate–severe CP to inform appropriate service development for this population and their caregivers |
Cerebral Palsy |
22 child–caregiver pairs. Children’s age: 19–129 months |
Opportunistic |
Interviews |
| Barros da Silva (2018)[37] |
Portugal |
Porto |
To understand the breastfeeding experiences of mothers of children with Down’s Syndrome, including their perceptions of the breastfeeding process and their specific practices. |
Down’s Syndrome |
Mothers (n = 10) of children with DS. Children’s age: 2 mths– 9 yrs. |
Snowball |
In-depth semi-structured interviews |
| Cartwright (2018)[39] |
UK |
West Midlands, North-west |
To explore the experiences of mothers of infants with Down’s Syndrome regarding feeding, and to provide information to better inform health professionals caring for new mothers and their babies. |
Down’s Syndrome |
Mothers (n = 8) with infants with Down’s Syndrome. Children’s mean age: 18 months (range 8 weeks—3 years) |
Convenience |
Focus groups |
| Donkor (2019)[42] |
Ghana |
Four geographical regions: Agogo, Dodowa, Sunyani, and Techiman |
To explore caregiver experiences of feeding before and after a community-based training program in Ghana |
Cerebral Palsy |
13 caregivers of severely undernourished children with CP at start of training program. 11 interviewed again after year of training and home visits.Children’s age: 1 yr 5 mths—11 yrs 11 mths |
Convenience |
Interviews |
| Morrow (2007)[44] |
Australia |
Sydney |
To identify the major determinants of feeding-related quality of life (QoL) in children with quadriplegic cerebral palsy (QCP) from the perspective of health professionals to provide a framework for comprehensive clinical evaluation of health status in this group |
Cerebral Palsy |
General and specialist paediatricians (n = 18), nurses (n = 15); allied health professionals (n = 13). |
Purposive—to ensure variability in speciality, gender, years of experience and place of work |
Five semi-structured focus groups |
| Swift (2010)[40] |
Australia |
South Australia |
To describe the experiences of both mothers and fathers with a child in a neonatal unit with a feeding difficulty at 36 weeks gestational age, with particular attention on the role of the feeding difficulty, the meaning of the experience for parents and the influence of and impact on, family relationships; second, to develop exploratory model from the data to identify considerations for current and future neonatal unit staff to be incorporated into daily practice to improve family-centred care |
Difficulty latching on, fatigue while feeding, swallowing / breathing difficulties while feeding conditions unspecified |
Mothers (n = 7) and fathers (n = 2).Children’s age: 3–6 months old at time of interview |
Purposive |
Interviews and field notes |
| Wieczorkievicz & De Souza (2009) [38] |
Brazil |
Rio Negro-PR and Mafra-SC (South) |
To describe the facilities found by women / mothers of children with Down’s Syndrome in process of breastfeeding |
Down’s Syndrome |
Mothers of children with Down’s Syndrome (n = 6). Children’s age: Unspecified |
Selected from registration sheets obtained from Association of Parents and Friends of Exceptional Children (APAE). |
In-depth interview |
| Zuurmond (2018)[43] |
Ghana |
Four geographical regions |
To explore the impact of a participatory training programme for caregivers delivered through a local support group, with a focus on understanding caregiver wellbeing. |
Cerebral Palsy |
18 primary caregivers; 14 mothers, 3 grandmothers, and one male cousin. Children’s age: 18 mths—12 yrs |
Purposively sampled |
Interviews |
