Table 1.
Comparison of demographic characteristics of all biobank participantsa by choice, at time of consent, to restrict or permit posthumous availability of biospecimens.
| Characteristicb | Permittersd (N = 49,388) |
Restrictorsc (N = 1314) |
p |
|---|---|---|---|
| Age | <0.0001 | ||
| Mean (SD) | 62.4 (15.6) | 66.3 (14.3) | |
| Median, range | 64.4, 18.2–103.5 | 67.8, 19.8–98.3 | |
| Time since biobank enrollment | <0.0001 | ||
| ≤1 year | 9402 (19.0%) | 313 (23.8%) | |
| >1 year | 39,986 (81.0%) | 1001 (76.2%) | |
| Last invited to participate in research | 0.0176 | ||
| Never invited | 39935 (80.9%) | 1078 (82.0%) | |
| ≤1 year | 2173 (4.4%) | 74 (5.6%) | |
| 1–3 years | 3037 (6.1%) | 63 (4.8%) | |
| >3 years | 4243 (8.6%) | 99 (7.5%) | |
| Gender | <0.0001 | ||
| Male | 20276 (41.1%) | 422 (32.1%) | |
| Female | 29112 (58.9%) | 892 (67.9%) | |
| Race | 0.0220 | ||
| White | 44900 (92.4%) | 1178 (90.7%) | |
| Non-White | 3695 (7.6%) | 121 (9.3%) | |
| Education | <0.0001 | ||
| Less than high school diploma | 829 (1.7%) | 29 (2.3%) | |
| High school diploma or GED | 6963 (14.6%) | 258 (20.4%) | |
| Some college | 15454 (32.3%) | 446 (35.2%) | |
| College graduate | 12281 (25.7%) | 272 (21.5%) | |
| Graduate education | 12295 (25.7%) | 262 (20.7%) | |
| Marital status at time of consent | <0.0001 | ||
| Single | 3448 (7.3%) | 131 (10.3%) | |
| Married | 37848 (79.8%) | 904 (71.3%) | |
| Separate/divorced/widowed | 6161 (13.0%) | 232 (18.3%) |
aAll participants at the time the survey was fielded (July, 23, 2015).
bUnless otherwise noted, the format for all values is N (%).
cThis represents the study sample frame from which we derived our sample of individuals restricting access at time of consent.
dThis represents the study sample frame from which we derived our matched controls.