Table 3.
Demographic comparison of participants with consistent vs. inconsistent preferences, grouped by preference indicated at consent.
| Characteristica | Consistent permitters | Inconsistent permitters | Consistent restrictors |
Inconsistent restrictors | ||
|---|---|---|---|---|---|---|
| Permit→Permit (N = 553) |
Permit→Restrict (N = 27) |
p | Restrict→Restrict (N = 136) |
Restrict→Permit (N = 448) |
p | |
| Age | 0.0343 | 0.1241 | ||||
| Mean (SD) | 66.1 (13.1) | 71.5 (12.4) | 64.9 (15.2) | 67.0 (12.9) | ||
| Median, range | 67.8 (20–97) | 73.8 (38–95) | 66.4 (23–95) | 68.3 (20–97) | ||
| Time since biobank enrollment | 0.4665 | 0.1022 | ||||
| ≤1 year | 149 (26.9) | 9 (33.3) | 61 (44.9) | 166 (37.1) | ||
| >1 year | 404 (73.1) | 18 (66.7) | 75 (55.1) | 282 (62.9) | ||
| Last invited to a research study | 0.1471 | 0.3266 | ||||
| Never invited | 524 (94.8) | 26 (96.3) | 113 (83.1) | 379 (84.6) | ||
| ≤1 year | 1 (0.2) | 1 (3.7) | 17 (12.5) | 37 (8.3) | ||
| 1–3 years | 11 (2.0) | 0 (0) | 1 (0.7) | 11 (2.5) | ||
| >3 years | 17 (3.1) | 0 (0) | 5 (3.7) | 21 (4.7) | ||
| Gender | 0.5165 | 0.9411 | ||||
| Male | 172 (31.1) | 10 (37.0) | 46 (33.8) | 150 (33.5) | ||
| Female | 381 (68.9) | 17 (63.0) | 90 (66.2) | 298 (66.5) | ||
| Race | 0.4506 | 0.5927 | ||||
| White | 510 (92.6) | 24 (88.9) | 123 (90.4) | 412 (92.2) | ||
| Non-White | 41 (7.4) | 3 (11.1) | 13 (9.6) | 35 (7.8) | ||
| Education | 0.2810 | 0.2811 | ||||
| Less than high school diploma | 7 (1.3) | 1 (3.7) | 5 (3.7) | 4 (0.9) | ||
| High school diploma or GED | 88 (16.1) | 3 (11.1) | 29 (21.3) | 84 (19.4) | ||
| Some college | 174 (31.9) | 10 (37.0) | 43 (31.6) | 145 (33.4) | ||
| College graduate | 126 (23.1) | 3 (11.1) | 29 (21.3) | 97 (22.4) | ||
| Graduate education | 151 (27.7) | 10 (37.0) | 30 (22.1) | 104 (24.0) | ||
| Marital status at time of consent | 0.1368 | 0.0538 | ||||
| Married | 440 (80.1) | 17 (65.4) | 91 (67.4) | 339 (76.7) | ||
| Single | 79 (14.4) | 7 (26.9) | 17 (12.6) | 72 (16.3) | ||
| Separate/divorced/widowed | 79 (14.4) | 2 (7.7) | 27 (20.0) | 31 (7.0) | ||
| Survived by | ||||||
| Anyone | 551 (99.6) | 22 (81.5) | <0.0001 | 132 (97.1) | 448 (100.0) | 0.0028 |
| Grandparents | 25 (4.6) | 0 (0.0) | 0.6161 | 10 (7.6) | 22 (4.9) | 0.2775 |
| Parents | 185 (33.8) | 4 (18.2) | 0.1668 | 46 (34.8) | 136 (30.5) | 0.3397 |
| Siblings | 486 (88.2) | 21 (95.5) | 0.4964 | 108 (81.8) | 396 (88.6) | 0.0542 |
| Children | 490 (88.9) | 19 (86.4) | 0.7264 | 75 (56.8) | 374 (83.7) | <0.0001 |
aUnless otherwise noted, the format for all values is N (%).