Table 2. Example of Household Data Charting by their Research Encounters.

Participant identification (PID)	Information given that was recalled	Feelings/emotions/concerns at time of information giving	Understanding of purpose and procedures	Who and why decided to join	Most appreciated	Mos concerning	Differences with non-participants	Indications of agency
HH002: Female, 24 months, 2.70 kg birth weight	That child has been enrolled and would be involved in some follow up clinical visits. When GM came to help during admission, she was informed that mother had agreed to participate, and blood would be drawn from the child.	Got concerned when was told some test results become available after some time about 2 to 3 years. Didn't understand why that was the case. Didn't ask further explanations	Was told child had been taken recruited into a research study, blood, urine, and stool samples will be collected, and child should be taken for follow-up after 6 weeks, 3 months, and 6 months to examine the child's progress. She was also told about given fare for the three visits but wasn't clear what would happen on the three visits.	Mother made the decision on her own. Agreed so that could find out what was ailing the child and wanted the child to get better. Was aware that thorough investigations would be conducted and in case, identify an illness for treatment.	Friendly staff who regularly asked how the child was fairing. Attention given to the children was also appreciated.	Blood draws since the child was already sick and weak. Not given results of the tests done from all the samples taken.	Mother did not notice any differences	Mother making decision to join without consulting GM whose main decision maker for family. Didn't ask for results, assumed that treatment was informed by the testing and was okay with that.
Hh011: Male, 15 months old, 2.06 kg at birth.	Reports being told that some examinations would be conducted, and those in research will have their bills paid in case they couldn't manage to.	Worried that they would have to incur extra costs as part of research participation.	Doesn't seem to understand what the research is and believes to be some chama/organization where children receive help with treatment.	Mother consented for her child to be involved in CHAIN, not clear why but perhaps to help out with the bills?	Was happy with fare and out-of-pocket reimbursements.	Worried about the too many blood draws.	Believed that all in the ward were part of research so didn't observe any differences.	With assumption that she would have to pay some extra money to participate, she wished she had other relatives close by-just in case she would need to pay