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. Author manuscript; available in PMC: 2022 Sep 6.
Published in final edited form as: J Neurol Sci. 2021 May 29;427:117515. doi: 10.1016/j.jns.2021.117515

Table 5. Potential Users of Epilepsy Classification.

Informational Need User Role
Sufficient knowledge conveyed in a comprehensible manner People with epilepsy Understand condition, treatments, and prognosis; care for oneself; connect with other people with a similar condition
  Family members / caregivers Understand condition, treatments, and prognosis; care for their family member; join support groups for family members / caregivers of people with epilepsy
Technical information to provide monitoring and basic care Electroneurodiagnostic technicians Nurses Acquiring context for EEG outputs
Acquire relevant information and convey accurate information to physicians
Specialized descriptions to determine management and provide referrals when appropriate Primary care physician Manage the everyday care of people with epilepsy and know when to refer to an epilepsy specialist
Further technical information for complex epilepsy care Neurologist Diagnose and manage the epilepsy-specific care of people with epilepsy; know when to refer to epilepsy specialist
Precise classification language to localize and manage epilepsy Epilepsy specialist Diagnose and manage the epilepsy-specific care of people with epilepsy
medically or surgically Neurosurgeon Decide whether surgical management is warranted, select the surgical technique, and perform surgery
Sufficient knowledge to conduct studies Genetics researcher Understand the genetics, phenotypic expressions, and variations in both with regard to epilepsy
Clear descriptions to guide research Public health researcher Understanding the epidemiology and outcomes of types of epilepsy
  Pharmaceutical manufacturer Understanding which types of epilepsy require development or refinement of antiseizure medications
Precise delineation of conditions to guide financing and policy Insurer Understand how to determine reimbursement for epilepsy care
  Funding authority Determine funding priorities for epilepsy research
  Policymaker Understanding the burden and economic consequences of epilepsy