Table 5. Potential Users of Epilepsy Classification.
Informational Need | User | Role |
---|---|---|
Sufficient knowledge conveyed in a comprehensible manner | People with epilepsy | Understand condition, treatments, and prognosis; care for oneself; connect with other people with a similar condition |
Family members / caregivers | Understand condition, treatments, and prognosis; care for their family member; join support groups for family members / caregivers of people with epilepsy | |
Technical information to provide monitoring and basic care | Electroneurodiagnostic technicians Nurses | Acquiring context for EEG outputs Acquire relevant information and convey accurate information to physicians |
Specialized descriptions to determine management and provide referrals when appropriate | Primary care physician | Manage the everyday care of people with epilepsy and know when to refer to an epilepsy specialist |
Further technical information for complex epilepsy care | Neurologist | Diagnose and manage the epilepsy-specific care of people with epilepsy; know when to refer to epilepsy specialist |
Precise classification language to localize and manage epilepsy | Epilepsy specialist | Diagnose and manage the epilepsy-specific care of people with epilepsy |
medically or surgically | Neurosurgeon | Decide whether surgical management is warranted, select the surgical technique, and perform surgery |
Sufficient knowledge to conduct studies | Genetics researcher | Understand the genetics, phenotypic expressions, and variations in both with regard to epilepsy |
Clear descriptions to guide research | Public health researcher | Understanding the epidemiology and outcomes of types of epilepsy |
Pharmaceutical manufacturer | Understanding which types of epilepsy require development or refinement of antiseizure medications | |
Precise delineation of conditions to guide financing and policy | Insurer | Understand how to determine reimbursement for epilepsy care |
Funding authority | Determine funding priorities for epilepsy research | |
Policymaker | Understanding the burden and economic consequences of epilepsy |