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. Author manuscript; available in PMC: 2025 Nov 8.
Published before final editing as: Autism Adulthood. 2025 Sep 1:25739581251369452. doi: 10.1177/25739581251369452

Table 2. Characteristics of studies.

First Author and year published Setting Study details Study quality
Year of data collection Funder Country Identity first/person first language Any other factors which may affect results Aim Recruitment Participants Research design (JBI) Data Collection Data Analysis Words included JBI score
Brady et al.
(2024)
Not stated, but ethical approval in 2022 Not stated Canada
(n=13) & UK
(n=11)
Identity first Incentives provided. Questions provided in advance. Autistic team member present during data collection. Included self-identifying as Autistic
Majority of participant: white and female.
Explore how Autistic people in the UK and Canada experience menopause, access service, support and information. Social media via community research associates 24 Autistic people (self ID or diagnosed) who were navigating menopause or postmenopausal.
Aged 40-71
Qualitative Demographic and Autistic menopause questionnaire (n=23)
Semi-structured online focus groups (n=16 participants) and online interviews (n=8)
Qualitative
Reflexive thematic analysis.
2,780 Yes: 9
Unclear:
1
Charlton et al. (2024) 2023 Unfunded Not stated Identity first Included self-identified Autistic people in the Autistic group; validated using RADDS 14. Study not specifically about menopause, so may have attracted a wide group of participants. Sample size was relatively large.
Online survey may be inaccessible to some potential participants.
Examine rates of menopause symptoms in Autistic and non-Autistic people at different stages of menopause. Autistica’s research network, Cambridge Autism Research Database, author’s contacts. 242 Autistic & 100 non- Autistic aged 40+ years at different stages of reproductive life (premenopausal - postmenopausal) Cross sectional Online survey ANOVA, chi-square
&ANCOVA
1,074 Yes: 7
Unclear:
1
de Visser et al. (2024) Not stated Unfunded United
Kingdom
Identity first Very broad range of ages; not all participants were menopausal. Sample was highly educated and white people were overrepresented. Many participants had other neuro- developmental disabilities Explore Autistic people’s experiences of reproductive and sexual health in the context of primary healthcare. Autistica’s email list (n=13,000), social media 136 Autistic adults aged 1871 years Cross sectional Online survey, using open and closed questions Descriptive statistics, MANOVA and thematic analysis 1,889 Yes: 8
Groenman et al. (2022) Not stated Innovational Research Incentives Schemed VICI (NWO) Netherlands Mixture Did not ask if HRT was used. Explore: prevalence of PMDD; Autistic menopause symptoms during menopause transitions; relationship between menopause symptoms and Autism, anxiety, depression and ADHD Mental health institutions; social media; Autism networks; researchers’ social networks. Autistic people aged over 40; self-reported irregular or absent menstruation.
 
Autistic (n=30):
Diagnosed as Autistic;
Excluded: intellectual disability, neurological disorders, alcohol or drug dependency.
Control (n=35):
Excluded: psychotic episodes, likely Autistic or ADHD
Cross sectional Dutch version of the Menopause Rating Scale;
Symptom Checklist-90 (SCL-90) subscales used for depression and anxiety proxy measure; ADHD self report (ASHD- SR); Autism Quotient (AQ)
f-test with group as independent variable and MRS score as the outcome. Bayseian analysis to assess group effects. Regression analysis to assess if MRS scores were associated with psychological symptoms. 318 Yes: 6
Unclear:
2
Jenkins et
al. (2024)
2023 Social
Sciences and Humanities Research Council of Canada
International, including: United Kingdom (n=211);
United States (n=123);
Canada (n=85);
Europe (n=60)
Identity first Few participants from the Global South; majority of participants were white; lack of accessibility to potential participants with learning disabilities; recall bias in some participants.
Included those self-identifying. Autistic people involved in developing and undertaking the research.
To explore the support needs of Autistic people during menopause Social media, researchers’ networks and support groups. 508 Autistic people with lived experience of menopause transition. Cross
Sectional
Online survey Descriptive statistics, ANOVA. Reflexive Thematic Analysis 3,624 Yes: 8
Karavidas and de Visser (2021) Not stated Not stated UK Identity first Offered in person or Skype interview mode. Included self-identifying as Autistic.
Did not collect ethnicity or HRT use. Participants were “expert” in Autism; may be unrepresentative. One participant was 16 years post menopause ‘change’.
To understand Autistic people’s understandings of the menopause change. Social media advertisement. 7 peri- (n=3) or post (n=4)- menopausal Autistic AFAB people who did not have intellectual disabilities. Aged 39-63.
6 participants = formal Autism diagnosis.
Qualitative Semi-structured interviews via Skype.
Participants were able to review and amend their transcript.
Material-discursive- intrapsychic approach within a critical realist epistemology, informed by thematic decomposition 3,858 Yes: 10
Moseley et al. (2020) Not stated, but appears to be 2019 (Moseley et al., 2021) Bournemouth
University
International: British (n=4), South African (n=1) Australian (n=1) Unknown (n=1) Identity first Questions provided in advance.
Small sample; did not ask if HRT was used; may be unrepresentative of Autistic community.
Explore: knowledge, difficulties and support needs relating to menopause. Two Autistic- run Facebook groups for Autistic adults 7 Autistic (including self identifying) AFAB people going through the menopause aged 49-63 years. Qualitative Online focus group.
AQ and RAADS- 14 used to assess Autism status.
Thematic analysis 1926 Yes: 6
Unclear:
3
No: 1
Moseley et al. (2021) 2019 Bournemouth
University
International:
British (n=13) Canadian (n=2)
South African
(n=1)
Australian
(n=1)
Identity first Questions provided in advance; range of interview modes provided to increase comfort.
Did not ask about mental health diagnoses; may be unrepresentative of Autistic community; recall bias (1 participant 21 years since last period).
Includes six participants from Moseley et al. (2021).
Explore: menopause awareness, experiences and impacts, support needs. Two Autistic- run Facebook groups for Autistic adults 17 Autistic (including selfidentifying) participants who believed they were going through the menopause (n=6) or had gone through it (n=11). 16 were cis women, aged 41-66 years. Qualitative Qualitative interviews, meeting participants access needs, including a/synchronicity
AQ and RAADS- 14 used to assess Autism status.
Inductive thematic analysis guided by Interpretative Phenomenological Analysis principles. 2184 Yes: 7
Unclear:
2
No: 1