Table 2.
Stakeholder groups ascribed codes and representation (No. and %) in the survey (A) and interviews (B).
| Stakeholder group (survey) | Code of the stakeholder group | No of Survey respondents | % of the total number of survey respondents |
|---|---|---|---|
| (A) SURVEY | |||
| Investigators/physicians | A | 183 | 46 |
| Patient representatives | B | B (B1+B2) comprise 33 | |
| B1 (representatives of patient organizations) | 91 | 23 | |
| B2 (individual patients/carers) | 40 | 10 | |
| Sponsors of clinical trials (commercial or academic) | C+F | 38 | 10 |
| Ethics committees | E | 4 | 1 |
| Regulators | H | 4 | 1 |
| Other | I | 36 | 9 |
| Total | 396 | ||
| Stakeholder group | Code of the stakeholder group | No of Interviewees | % of the total number of interviewees |
| (B) INTERVIEWS | |||
| Investigators/Physicians | A | 11 | 29 |
| Patient representatives | B | 11 | 29 |
| Pharmaceutical industry representatives | C | 5 | 13 |
| Policy experts | D | 6 | 16 |
| Ethics committees representatives | E | 3 | 8 |
| Academic clinical trials sponsors | F | 1 | 3 |
| National contact points | G | 1 | 3 |
| Total | 38 | ||