Table 1.
Examples of Posts/Comments
| Theme | Examples |
|---|---|
| Condition of patient | Some days are better of course but the toughest is when he's gasping for air and having an anxiety attack.…I find myself trying to breath for him. I give him his anxiety pill, start a breathing treatment, then sit with him—hold his hand and start praying out loud. It helps keep him calmed down and whenever he looks at me I try hard to have a big smile on my face no matter how terrified I am. |
| Emotions of the caregivers | People would do more but he only wants me to do things for him, and I get that we have been best friends for 22 years. I am just so emotional and was dealing with this much better until a few days ago. I just can't bear watching him die and there is nothing I can do about it. |
| Encouraging remarks to one another | We know and understand your stress and know we are here for you. You are not alone even though it may feel like it. Take advantage of us because it will help with the stress, we promise. |
| Messages of affection | We're there with you and we feel your pain. Give Mom a little hug and kiss from us and tell her we love her. Thanks for being such a GREAT daughter as well as a GREAT caregiver. |
| Strategies for coping | Sometimes meditation helps especially when you can't get out of the house. I usually light a candle, but can't do that when the oxygen is on. I close my eyes and slowly take deep breaths and count to 4. Breathe in…1 2 3 4 and out…1 2 3 4.…Also, you can journal if you like to write or type. Write all your worries down, then tear the paper into little pieces. |