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. 2020 Nov 6;19:170. doi: 10.1186/s12904-020-00674-2

Table 2.

Effective Practice and Organisation of Care (EPOC) Taxonomy “Implementation Strategies” and “Financial Arrangements” Fitting the “Taking Care of You” (TCY) Program Strategy and Objectives

Subcategory TCY strategy Strategy objective

Implementation Strategies

Interventions designed to bring about changes in healthcare organizations, the behavior of healthcare professionals or the use of health services by healthcare recipients

Category: Interventions targeted at healthcare workers
A. Communities of Practice Local advocacy to convene capacity building Train a specialized PPC team through graduate programs abroad
B. Educational Materials Design and create written, and online evidence-based information material Supply healthcare professionals with key objective topics and information on PPC
C. Educational Meetings Local, and national educational courses and workshops Create a successful method to favor mass training and raising awareness on PPC approach and principles for healthcare professionals
D. Interprofessional Education Coach national multidisciplinary courses and participation in postgraduate university courses Increase national multidisciplinary knowledge on palliative philosophy
E. Patient-Mediated Interventions Medical, psychological and social work evaluation of the patient and family to discuss as part of multidisciplinary medical board meetings Provide a psychosocial and medical perspective of the patient and family prior to multidisciplinary decision-making meetings

Financial Arrangements

Changes in how funds are collected, insurance schemes, how services are purchased, and the use of targeted financial incentives or disincentives

Category: Collection of funds
F. External Funding Apply for funding through a research grant Promote and sustain pediatric palliative care in a middle-income country
Category: Insurance schemes
G. Community-Based Health Insurance Held Advocacy Reunions with health care providers locally Lower access barriers for patients and families of MIC
Category: Mechanisms for the payment of health services
H. Payment Methods for Health Workers Reunions with the board of directors and decision-makers emphasizing the added value of PPC, based on enhancing patient and family satisfaction, patient experience, health humanization, and resource optimization Obtain institutional support to consolidate the team and decrease the access barrier

Delivery Arrangements

Changes in how, when, and where healthcare is organized and delivered, and who delivers healthcare.

Category: Where care is provided and changes to the healthcare environment
I. Site of service delivery Promote patient attention in the outpatient scenario through medical order Since most of the patients are referred to the program from hospitalization, we make sure they can continue attention in the outpatient ward
Category: Who provides care and how the healthcare workforce is managed
J. Role expansion or task shifting Coached local interdisciplinary team meetings, educational meetings among the general PC group. Guide the conformation of the Pediatric Palliative Care team
Category: Coordination of care and management of care processes
K. Care pathways Held institutional multidisciplinary meetings with local health care providers Contextualize life-limiting-and-threatening disease
L. Case management Participated in multidisciplinary board meetings with treating specialist and several homecare services Coordinate and guarantee an integrative followup to improve patients care
M. Communication between providers Coached local interdisciplinary team meetings, support for clinical improvement plans of the team and regional educational meetings Facilitating and establishing communication and developing an improved dialogue.
N. Continuity of care While in hospitalization we hold medical board meetings with interdisciplinary teams and promote continuity through outpatient setting followup Ensuring the responsibility of care and bereavement followup
O. Disease management Coached educational team meetings, regional meetings with health care professionals and healthcare providers Promote adequate quality of life during the health-disease-attention process
P. Patient-initiated appointment systems Providing phone advisory 24 h 7 days a week Around-the-clock availability for care consultation to direction the family and bereavement care
Q. Referral systems Coached educational sessions with the hospital’s pediatric departments Educating about the importance of involving comprehensive care and patients with complex chronic diseases who are candidates for referral to the PPC team
R. Shared decision-making Meetings and constant communication is held with TCYteam, treating specialist and the family Establish individualized management goals
S. Teams Coached local interdisciplinary team meetings, support for clinical improvement plans, and regional educational meetings Establishing a multidisciplinary team that provides organizational status, coordinated care, and capability based on individualized relevance and effectivity
T. Transition of Care Interdisciplinary meetings between treating specialist, our team and the family Provide objective information to the family when a patient’s treatment changes from curative to palliative

PPC Pediatric Palliative Care, MIC Middle Income Country, TCY “Taking Care of You”, MIC Middle-Income countries