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. 2020 Nov 9;15(Suppl 1):310. doi: 10.1186/s13023-020-01550-1

Table 2.

Adherence issues summary

Specific issue Impact
NP-C

Disease severity

Behavioural and advanced disease related (non-ambulation):

Biting through strap

Mum of child with NP-C: “She loves the colour purple – it’s her favourite colour. But because of the soft texture of the strap she bites through it”.

Low engagement

Data loss

Required frequent replacement

DMD

Behavioural issues

Removing watch due to asymmetric design - touch on the skin

Specialist physio: “Some of our DMD boys didn’t like the asymmetry. It is quite large on the wrist and the strap may need a shorter alternative for young children”.

Data loss