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. 2016 Aug 7;24(2):345–351. doi: 10.1093/jamia/ocw076

Table 1.

Characteristics of study participants with expertise on open health data release, 2015a

Characteristic Number
Organization type
New York State Department of Health 23
US Department of Health and Human Services 5
Other New York State agency (Office of Health Information Technology Services, Office of Mental Health) 4
Nongovernmental organization (Health Data Consortium, for-profit health insurer, not-for-profit health services organization) 4
Other state health agency (California, Washington) 2
City health department 2
Primary professional roleb
Division director/senior manager 16
Executive leader 7
Manager 7
Independent contractor 4
Legal affairs 3
Data owner 2
Data expert 1
Geographic location
New York 28
Illinois 2
Maryland 2
California 3
District of Columbia 3
Georgia 1
Washington 1
Total interviewsc
Total participants 40
Total interviews 32

aSource: Authors’ interviews with policymakers and practitioners

bClarification of some professional roles is as follows: “executive leadership” refers to someone at the commissioner or C-level, “data owner” refers to someone with expertise on and administrative authority over a specific health dataset and with authority to release it to an open data platform, and “data expert” refers to someone understood by his/her peers to be a key contact and authority on the organization’s health data assets. Individuals may have had multiple roles, so this reflects the role most relevant to the interviews.

cThere are more participants than interviews because some interviews had multiple participants.