Table 1.
Characteristic | Number |
---|---|
Organization type | |
New York State Department of Health | 23 |
US Department of Health and Human Services | 5 |
Other New York State agency (Office of Health Information Technology Services, Office of Mental Health) | 4 |
Nongovernmental organization (Health Data Consortium, for-profit health insurer, not-for-profit health services organization) | 4 |
Other state health agency (California, Washington) | 2 |
City health department | 2 |
Primary professional roleb | |
Division director/senior manager | 16 |
Executive leader | 7 |
Manager | 7 |
Independent contractor | 4 |
Legal affairs | 3 |
Data owner | 2 |
Data expert | 1 |
Geographic location | |
New York | 28 |
Illinois | 2 |
Maryland | 2 |
California | 3 |
District of Columbia | 3 |
Georgia | 1 |
Washington | 1 |
Total interviewsc | |
Total participants | 40 |
Total interviews | 32 |
aSource: Authors’ interviews with policymakers and practitioners
bClarification of some professional roles is as follows: “executive leadership” refers to someone at the commissioner or C-level, “data owner” refers to someone with expertise on and administrative authority over a specific health dataset and with authority to release it to an open data platform, and “data expert” refers to someone understood by his/her peers to be a key contact and authority on the organization’s health data assets. Individuals may have had multiple roles, so this reflects the role most relevant to the interviews.
cThere are more participants than interviews because some interviews had multiple participants.