Patients and Families |
1. Access to clinical information, personal notepad, and educational materials is highly valued. |
2. Portal should enhance, not replace, in-person communication with the care team. |
Clinician Leaders |
3. Appropriate timing for staff to introduce the portal to patients and providing flexible access are critical, because ICU patients are sick and families may be in a state of crisis. |
4. Increased documentation requirements, staffing demands, and training resources need to be resolved to support effective adoption by clinicians. |
5. Nursing staff caring for vulnerable populations may have concerns about identifying information being shared on the portal, requiring collaborative agreements such as only first name and photo will be used. |
Policymakers and Administrators |
6. Need to promote equitable access to address the “digital divide." |
Information Systems Leaders |
7. Web-based mobile platforms are ideal with a database architecture that can support real-time data display. |
8. Use of standards facilitates integration with the EHR, but read-only access from the EHR is limiting. |
Researchers |
9. Pilot testing to refine communication technologies, such as messaging workflows and video-conferencing, is needed. |
10. Demonstration of impact on clinical outcomes is essential to sustain clinical staff engagement during and after pilot stages of investigation. |