Table 1.
Data collected through the elevateMS study app.
Data source | Timeline of data collection |
|
|
Baseline demographics | |||
|
Sociodemographic data (age, gender, race, education, health insurance, employment status, geographic location) | Day 2 |
|
|
MSa disease characteristics (diagnosis, medication, family history) | Day 1 |
|
Patient-reported outcomes | |||
|
Overall physical abilityb | Day 2 |
|
|
Check-in survey: MS symptoms and triggers | Daily |
|
|
Check-in survey: health, mobility, painc | Daily |
|
|
Short-form Neuro-QoLd domains | Every third functional test targeting that domain (Cognitive Function domain: DSST; Upper Extremity Function domain: finger-tapping/finger-to-nose; Lower Extremity Function domain: walk and balance) |
|
Active functional test | |||
|
Finger-tapping | Weeklyf |
|
|
Walk and balance | Weeklyf |
|
|
DSSTe | Weeklyf |
|
|
Finger-to-nose | Weeklyf |
|
Local weather data | |||
|
Temperature | Every time a test was performed |
|
|
Humidity | Every time a test was performed |
|
|
Cloud coverage | Every time a test was performed |
|
|
Atmospheric pressure | Every time a test was performed |
|
aMS: multiple sclerosis.
bBased on a truncated 4-point Patient-Determined Disease Steps scale, administered at baseline to all patients with MS (Normal, Mild Disability, Moderate Disability, Gait Disability).
cBased on a 5-point Likert scale (Health: Amazing, Okay, So-So, Not great, Horrible; Mobility: Excellent, Very good, Good, Not great, Horrible; Pain: None, Mild, Moderate, Severe, Horrible).
dNeuro-QoL: Quality of Life in Neurological Disorders.
eDSST: Digit Symbol Substitution Test.
fWith option for participants to complete more frequently.