Table 1.
Sample of observational pediatric-specific registries and studies on COVID-19.
| Study | Type | Scopea | Inclusion criteria | Capability for data sharing and reuse |
|---|---|---|---|---|
| Australian Neonatal COVID-19 Study | Registry | Reporting by designated clinicians in Australia | Mother/infant dyad hospitalized in perinatal period with suspected or laboratory-confirmed COVID-19 | Specified procedures for data sharing and reuse |
| BPSU Study: Neonatal complications of COVID-19 (British Paediatric Surveillance Unit Study) | Surveillance study | Hospitals in the United Kingdom and Northern Ireland | Neonate (aged <29 days) hospitalized with confirmed COVID-19 or born to mother with confirmed infection | Limited access to data via application |
| COVID-19 and Childhood Cancer Registry | Registry | Healthcare providers globally | Patients aged <19 years with malignancy or prior hematopoietic stem cell transplant | Not possible at this time |
| COVID-19 Data: North American Pediatric ICUs | Dashboard | Hospitals in North America | Patients with confirmed COVID-19 and admitted to pediatric ICU | Not specified |
| COVID-19 Pediatric Rheumatology Database | Registry | Sites globally | Patients aged <19 years with any type of pediatric rheumatic disease | Limited access to data via application |
| COVID-19—service evaluation and audit | Surveillance study | Hospitals in England | Patients aged 29 days to <18 years hospitalized with confirmed COVID-19 | Not specified |
| EPICENTRE | Registry | Hospitals globally with an active pediatric or neonatal ICU | Neonate (up to 30 days) or child (aged 30 days to <18 years) hospitalized with confirmed COVID-19 and requiring critical care or born to mother with confirmed infection | Limited access to data via application |
| International COVID-19 PICU Collaborative | Research collaborative | Set of pediatric hospitals in North America | Patients aged <21 years with confirmed COVID-19 and admitted to pediatric ICU | Not specified |
| National Registry for Surveillance and Epidemiology of Perinatal COVID-19 Infections | Registry | Hospitals in the US with newborn delivery services | Mother/infant dyad where mother has confirmed COVID-19 in the perinatal period | Not possible at this time |
| Overcoming COVID-19 | Surveillance study | Pre-specified set of hospitals in the US | Patients aged <26 years hospitalized with confirmed COVID-19 | Not possible at this time |
| PAN-COVID (Pregnancy And Neonatal outcomes for women with COVID-19) | Registry | Hospitals globally where clinician has registered to contribute data | Neonate of mother with suspected or confirmed COVID-19 | Not specified |
| Pediatric COVID-19 Convalescent Plasma Use Registry Study | Registry | Hospitals in the US | Patients aged <18 years of age who received COVID-19 convalescent plasma transfusion | Not specified |
| Pediatric COVID-19 US Registry | Registry | Sites in the US | Patients aged <21 years with confirmed COVID-19 | Limited access to data via application |
|
PERN COVID-19 study (Pediatric Emergency Research Network COVID-19 study) |
Prospective observational study | Pre-specified set of 50 emergency departments across 11 countries | Patients aged <18 years tested for COVID-19 in the emergency department | Not possible at this time |
| Pediatric Intensive Care Audit Network (PICANet) | Surveillance | Pediatric ICUs within the UK | Patients aged <18 years with suspected or confirmed COVID-19 admitted to pediatric ICU | Limited access to data via application |
|
The PAWS-COVID-19 Registry (Pediatric AirWays ComplicationS COVID-19 Registry) |
Registry | Hospitals globally | Patients aged <19 years undergoing anesthesia during the pandemic, including cohorts with confirmed and suspected COVID-19 | Not specified |
| WHO Global COVID-19 Clinical Platform: multisystem inflammatory syndrome (MIS) in children and adolescents | Registry | Hospitals globally | Patients aged <20 years suspected to have multisystem inflammatory syndrome temporally related to COVID-19 | Not specified |
COVID-19 coronavirus disease 2019, ICU intensive care unit.
aReflects eligibility or participation and data contribution based on available reports as of November 9, 2020.