Table 6.
Shared perspectives | |
---|---|
• FM is related to the ability to move and perform tasks in daily life | |
• FM is impaired in PD | |
• There are different degrees of limitation, associated with disease progression | |
• Patients look for strategies to minimize FM limitations | |
• Exercise, cognitive training are efficacious strategies to deal with FM limitations | |
• There is a stigma associated with the use of walking aids | |
Different perspectives | |
Patients | Health professionals |
What is the impact of FM limitations on the patient's daily life? | |
• For early stage patients FM problems are mainly a problem of slower rhythm. • With the disease progression there is a clear perception of FM limitations, being the most limiting factor of activities of daily living • Advance stage patients feel ashamed for drawing others' attention |
• First limitations: stand up from a chair, get out of the bed or from the car • Patients initially devalue the FM problems, then fell sadness and frustration. • Vary from patient to patient, according to lifestyle and tolerance with himself |
The use of walking aids | |
• From the perspective of early stage patients, walking aids are not necessary for PD. • For both early and advance patients FM problems can be solved with good management of the disease, prevention and education by a specialist • Patients try walking aids on their own initiative, without a previous training period. Falls occur. • For both early and advanced patients, the ability to complete a task successfully is more valuable than the time spent with it. |
• The presence of imbalances and an increased risk of falling are the first warning signs for the need for walking aids. • Patients face the recommendation negatively. The fear of falling helps to accept the recommendation of a walking aid. • The choice of walking aid should be personalized, according to the patient's clinical characteristics. Physiotherapy sessions are important to a test and adapt to the walking aid that best suits the patient. • The time spent performing a task is also a concern. |