Table 2.

Theme and subthemes

Themes	Subthemes
Difficulties associated with establishing a diagnosis of congenital CMV	Shock of diagnosis Lack of awareness among medical community Disorganised pathways to diagnosis
Burden associated with caring for a child with congenital CMV	Dealing with uncertainty and unpredictability Loss of a dream Guilt and responsibility
Societal network: facilitators and barriers to coping	Support (or lack of support) from family and community Support (or lack of support) from professionals Raising awareness and educating wider community

CMV, cytomegalovirus.