TABLE 1.
Participant Demographic Details—Online Survey, Semistructured Interviews (Phase 1)
| Online Survey | n (%) |
|---|---|
| Patient | N=78 |
| Age range (y) | |
| 18-34 | 4 (5) |
| 35-44 | 8 (10) |
| 45-54 | 19 (25) |
| 55-64 | 28 (36) |
| 65-74 | 15 (19) |
| >75 | 4 (5) |
| Ethnicity | |
| White—UK | 71 (91) |
| White—other | 6 (7.5) |
| Mixed—white UK/African | 1 (1.5) |
| Gender | |
| Male | 27 (35) |
| Female | 51 (65) |
| Cause of cirrhosis | |
| Autoimmune (PBC, AIH, PSC) | 42 (54) |
| Nonalcohol fatty liver disease | 14 (18) |
| Alcohol-related liver disease | 10 (13) |
| Viral (HBV/HCV) | 3 (4) |
| Other (hemochromatosis, Budd-Chiari, SCS, cryptogenic) | 5 (6) |
| Unknown | 4 (5) |
| Semistructured Interviews | n (%) |
| Patient | N=12 |
| Age | |
| Mean (SD) | 51 (11) |
| Minimum-maximum | 31-69 |
| Gender | |
| Male | 8 (67) |
| Female | 4 (33) |
| Ethnicity | |
| White—UK | 7 (58) |
| White—other | 3 (25) |
| South Asian | 1 (7.5) |
| Other | 1 (7.5) |
| Cause of cirrhosis | |
| Alcohol-related liver disease | 6 (50) |
| NASH/NAFLD | 2 (50) |
| Hepatitis C | 1 (3) |
| Unknown | 3 |
| Close family member | N=6 |
| Relationship status | |
| Parent | 3 |
| Son | 2 |
| Spouse | 1 |
| Gender | |
| Male | 3 (50) |
| Female | 3 (50) |
| Ethnicity | |
| White—UK | 6 (100) |
| Cause of patient cirrhosis | |
| Alcohol-related liver disease | 3 (50) |
| NASH | 1 (17) |
| Unknown | 2 (33) |
| Health professional | |
| Profession | |
| Consultant hepatologist | 5 |
| Registrar/clinical fellow | 2 |
| Transplant nurse coordinators | 4 |
| Clinical nurse specialist | 1 |
| Alcohol liaison nurse | 1 |
| Dietician | 1 |
| Gender | |
| Male | 6 (43) |
| Female | 8 (57) |
| Ethnicity | |
| White—UK | 12 (86) |
| Black—UK | 1 (12) |
| South Asian | 1 (12) |
AIH indicates autoimmune hepatitis; HBV, hepatitis B virus; HCV, hepatitis C virus; NAFLD, nonalcoholic fatty liver disease; NASH, nonalcoholic steatohepatitis; PBC, primary biliary cholangitis; PSC, primary sclerosing cholangitis; SCS, secondary bilary cirrhosis.