Table 2.
Partial list of COVID-19 data initiatives
| Scale | Initiative | Resource name | Resource URL |
|---|---|---|---|
| Global | 4CE | Consortium for Clinical Characterization of COVID-19 by EHR (4CE) | https://transmartfoundation.org/covid-19-community-project/; https://covidclinical.net/ |
| Apple Mobility | Apple Mobility Trends Reports | https://www.apple.com/covid19/mobility | |
| ASM | American Society of Microbiology COVID Research Registry | https://asm.org/COVID/COVID-19-Research-Registry/Home | |
| C-19RD | COVID-19 research database | https://covid19researchdatabase.org/ | |
| CORD-19 | COVID-19 Open Research Dataset Challenge (CORD-19) | https://www.kaggle.com/allen-institute-for-ai/CORD-19-research-challenge | |
| COVID-19 DDI | COVID-19 Data Discovery Index | www.covid19dataindex.org | |
| Evidence Accelerator | FDA Evidence Accelerator program | https://www.focr.org/covid19 | |
| Facebook Density | Facebook population density | https://data.humdata.org/dataset/highresolutionpopulationdensitymaps | |
| Hopkins Resource Center | Johns Hopkins Coronavirus Resource Center | https://coronavirus.jhu.edu/us-map | |
| Host Genetics | COVID-19 Host Genetics Initiative | https://www.covid19hg.org | |
| NY Times COVID-19 | NY Times COVID-19 Data | https://raw.githubusercontent.com/nytimes/covid-19-data | |
| OHDSI | OHDSI study-a-thon | https://www.ohdsi.org/covid-19-updates/ | |
| Our World in Data | Our World in Data | https://ourworldindata.org/coronavirus-source-data | |
| Pandemic Data Room | Flattening the curve: COVID-19 Pandemic Data Room Visualization Challenge | https://cgdv.github.io/challenges/COVID-19/ | |
| R2D2 | Reliable Response Data Discovery for clinical COVID-19 consultations using patient observations | https://covid19questions.org | |
| SECURE-IBD | Surveillance, Epidemiology of Coronavirus (COVID-19) under research exclusion | https://covidibd.org/ | |
| TrinetX | TriNetX network | https://www.trinetx.com/coronavirus/ | |
| Worldometer | Worldometer | https://www.worldometers.info/coronavirus/ | |
| National | ACT | ACT Network COVID-19: Developing COVID-19 phenotype and ontology | https://www.amia.org/sites/default/files/AMIA-COVID19-Webinar-Series-ACT-Network-CRI-2.pdf |
| ACTIV | ACTIV (Accelerating COVID-19 Therapeutic Interventions and Vaccines): NIH clinical trials network for COVID vaccines testing | https://www.nih.gov/research-training/medical-research-initiatives/activ | |
| BEAT19 | Behavior, Environment and Treatments for Covid-19 (BEAT19) | https://github.com/beat19-org/beat19-public-data | |
| C19HCC | COVID-19 Healthcare Coalition (C19HCC) | https://mcovid.org/ | |
| C3I | Cancer Center Cessation Initiative (C3I) + COVID | https://sites.google.com/wisc.edu/c3icovidsmoking/grantee-resources | |
| CCC19 | COVID Cancer Consortium (CCC19) | https://ccc19.org/ | |
| CIVET | North American AIDS Cohort Collaboration on Research and Design (NA-ACCORD) Corona Infectious Virus Epidemiology Team (CIVET) | https://naaccord.org/covid-19 | |
| COVID Tracking | The COVID Tracking Project | https://covidtracking.com/ | |
| CovidCP | CovidCP clinical trials registry | ||
| eMERGE | eMERGE network to support COVID research | https://emerge-network.org | |
| HD4Action | RWJF Health Data 4 Action COVID-19 Registry (with AcademyHealth, Health Care Cost Institute, CareJourney, and numerous health systems) | https://www.academyhealth.org/blog/2020-04/new-initiative-aims-build-model-open-covid-19-patient-data-registry-network | |
| N3C | N3C (National COVID Cohort Collaborative): building a nationwide COVID-19 cohort through informatics | covid.cd2h.org/N3C | |
| NHSN | CDC’s National Healthcare Safety Network (NHSN) COVID-19 module | https://www.cdc.gov/nhsn/acute-care-hospital/covid19/index.html | |
| Optum | Optum | https://www.optum.com/campaign/ls-cb/covid-19-data-dashboard.html | |
| PCORNet | PCORNet Mini/Thin CDM: Stand-alone, ancillary COVID-19 version of the CDM | https://pcornet.org/news/pcornet-covid-19-common-data-model-launched-enabling-rapid-capture-of-insights/ | |
| SCCM | Society of Critical Care Medicine: Discovery VIRUS COVID-19 registry | https://www.sccm.org/Research/Research/Discovery-Research-Network/VIRUS-COVID-19-Registry | |
| Sentinel | FDA Sentinel | https://www.sentinelinitiative.org/drugs/fda-sentinel-system-coronavirus-covid-19-activities | |
| SPHERES | CDC's SARS-CoV-2 Sequencing for public health emergency response, epidemiology, and surveillance | https://www.cdc.gov/coronavirus/2019-ncov/cases-updates/spheres.html | |
| US Mobility Data | US Mobility data | https://docs.google.com/forms/d/e/1FAIpQLSc501xfAzEPADOwRmsdHmu-v8aN14jnKHBmEmdJJcTgRLddqw/viewform | |
| Regional | CRISP | COVID-CRISP registry—diagnostic tests | https://www.crisphealth.org/guidance/providers/ |