Table 2. Response of 138 caregivers regarding information from online communities.
| Response | Agree | Disagree | Neither agree/disagree | |
|---|---|---|---|---|
| Online patient communities are a good place to learn about... | ||||
| 1. General disease information | 122 (88.4) | 8 (5.8) | 8 (5.8) | |
| 2. Other patient experiences* | 134 (97.8) | 3 (2.2) | 0 (0.0) | |
| 3. Knowledge to help manage my child's illness* | 108 (78.8) | 11 (8.0) | 18 (13.1) | |
| 4. Different centers approach to care* | 106 (77.4) | 11 (8.0) | 20 (14.6) | |
| 5. Additional groups and organizations | 97 (70.3) | 16 (11.6) | 25 (18.1) | |
| Medical information over the internet and social media... | ||||
| 6. Should be considered equal to information from team** | 24 (17.6) | 86 (63.2) | 26 (19.1) | |
| 7. Is likely to be correct* | 33 (24.1) | 56 (40.9) | 48 (35.0) | |
| 8. May lead me to change management without discussing with my team** | 4 (2.9) | 124 (91.2) | 8 (5.9) | |
Values are presented as number (%).
*n=137; **n=136.