Table 3. Response of 138 caregivers regarding benefits and harms of online communities.
| Response | Agree | Disagree | Neither agree/disagree | |
|---|---|---|---|---|
| Hearing about other patient experiences online... | ||||
| 1. Decreases my anxiety | 102 (73.9) | 19 (13.8) | 17 (12.3) | |
| 2. Helps me to realize there are other people like me* | 133 (97.1) | 1 (0.7) | 3 (2.2) | |
| 3. Can help me to better advocate for my child | 117 (84.8) | 3 (2.2) | 18 (13.0) | |
| 4. Can leave me feeling confused about the best course of action for my child | 40 (29.0) | 60 (43.5) | 38 (27.5) | |
| 5. Can lead to tension/conflict with other members | 19 (13.8) | 89 (64.5) | 30 (21.7) | |
| When sharing health information online, I worry that the information may be inappropriately shared... | ||||
| 6. Between members of the community | 24 (17.4) | 82 (59.4) | 32 (23.2) | |
| 7. With other companies or people outside the group | 37 (26.8) | 63 (45.7) | 38 (27.5) | |
Values are presented as number (%).
*n=137.