Table 1.
Demographics of 161 Parents of 117 Infants Who Responded to the Survey 1 Week after Return of Results
| Total (n, %) | rWES (n, %) | rWGS (n, %) | urWGS (n, %) | |
|---|---|---|---|---|
| Parents | 161 (100.0%) | 71 (44.1%) | 70 (43.5%) | 20 (12.4%) |
| Race/Ethnicity | ||||
| Hispanic | 47 (29.2%) | 26 (36.6%) | 16 (22.9%) | 5 (25.0%) |
| Caucasian/white | 79 (49.1%) | 32 (45.1%) | 34 (48.6%) | 13 (65.0%) |
| Asian | 2 (1.2%) | – | 2 (2.9%) | – |
| African American/Black | 3 (1.9%) | 1 (1.4%) | 2 (2.9%) | – |
| Native Hawaiian/Pacific Islander | 8 (5.0%) | 4 (5.6%) | 4 (5.7%) | – |
| Other | 17 (10.6%) | 7 (9.9%) | 8 (11.4%) | 2 (10.0%) |
| Unknown | 5 (3.1%) | 1 (1.4%) | 4 (5.7%) | – |
| Total households/probands | 117 (100.0%) | 54 (46.2%) | 49 (41.9%) | 14 (12.0%) |
| Parent/Families’ Primary Spoken Language | ||||
| English | 84 (71.8%) | 37 (68.5%) | 37 (75.5%) | 10 (71.4%) |
| Spanish | 21 (17.9%) | 11 (20.4%) | 7 (14.3%) | 3 (21.4%) |
| Bilingual | 6 (5.1%) | 3 (5.6%) | 2 (4.1%) | 1 (7.1%) |
| Other | 3 (2.6%) | 1 (1.9%) | 2 (4.1%) | – |
| Highest Educational Attainment | ||||
| Up to high school diploma | 38 (32.5%) | 17 (31.5%) | 13 (26.5%) | 8 (57.1%) |
| Up to four year college degree | 29 (24.8%) | 13 (24.1%) | 13 (26.5%) | 3 (21.4%) |
| Up to graduate degree | 47 (40.2%) | 22 (40.7%) | 22 (44.9%) | 3 (21.4%) |
| Result of Test | ||||
| No diagnosis | 90 (76.9%) | 44 (81.5%) | 39 (79.6%) | 7 (50.0%) |
| Positive | 27 (23.1%) | 10 (18.5%) | 10 (20.4%) | 7 (50.0%) |
| Age at consent (days, median, range) | 4 (1–115) | 4 (1–115) | 4 (1–105) | 6 (2–67) |
| Time to results (days, median, range) | 10.1 (1.1–49.1) | 11.2 (6.5–38.6) | 10.8 (3.9–49.1) | 2.3 (1.1–10.0) |
Race/ethnicity was from the infants’ EHRs. Highest educational attainment is for the household.