Table 2.
Parental Responses to Ten Questions from the 1-Week Post-Return of Results Survey
| Total (n, %) | rWES (n, %) | rWGS (n, %) | rWES versus rWGS p Value | urWGS (n, %) | urWGS versus rWES + rWGS p Value | Positive Tests (n, %) | Negative Tests (n, %) | Positive versus Negative p Value | |
|---|---|---|---|---|---|---|---|---|---|
| Total Parents | 161 (100%) | 71 (44.1%) | 70 (43.5%) | – | 20 (12.4%) | – | 41 (25.5%) | 120 (74.5%) | – |
| Q1. Adequately Informed | |||||||||
| Agree | 147 (91.3%) | 63 (88.8%) | 65 (92.9%) | 19 (95%) | 38 (92.7%) | 109 (90.8%) | |||
| Neutral | 4 (2.5%) | 4 (5.6%) | – | 0.16 | – | 1 | 2 (4.9%) | 2 (1.7%) | 0.24 |
| Disagree | 10 (6.2%) | 4 (5.6%) | 5 (7.1%) | 1 (5.0%) | 1 (2.4%) | 9 (7.5%) | |||
| Q2. Understand Results | |||||||||
| Yes | 127 (78.9%) | 55 (77.5%) | 60 (85.7%) | 12 (60.0%) | 23 (56.1%) | 104 (86.7%) | |||
| Somewhat | 34 (21.1%) | 16 (22.5%) | 10 (14.3%) | 0.28 | 8 (40.0%) | 0.04 | 18 (43.9%) | 16 (13.3%) | <0.001 |
| No | – | – | – | – | – | – | |||
| Q3. Results Useful | |||||||||
| Yes | 124 (77.0%) | 55 (77.5%) | 54 (77.1%) | 15 (75%) | 39 (95.1%) | 85 (70.8%) | |||
| Somewhat | 32 (19.9%) | 14 (19.7%) | 13 (18.6%) | 1 | 5 (25%) | 0.78 | 2 (4.9%) | 30 (25.0%) | 0.004 |
| No | 5 (3.1%) | 2 (2.8%) | 3 (4.3%) | – | – | 5 (4.2%) | |||
| Q4. More Knowledgeable about Child’s Future Health | |||||||||
| Agree | 129 (80.1%) | 58 (81.7%) | 57 (81.4%) | 14 (70.0%) | 33 (80.5% | 96 (80.0%) | |||
| Neutral | 23 (14.3%) | 12 (16.9%) | 8 (11.4%) | 0.18 | 3 (15%) | 0.16 | 5 (12.2%) | 18 (15.0%) | 0.78 |
| Disagree | 9 (5.6%) | 1 (1.4%) | 5 (7.1%) | 3 (15%) | 3 (7.3%) | 6 (5.0%) | |||
| Q5. Better Able to Manage Potential Symptoms | |||||||||
| Agree | 106 (66.2%) | 46 (65.7%) | 47 (67.1%) | 13 (65%) | 34 (82.9%) | 72 (60.0%) | |||
| Neutral | 44 (27.5%) | 21 (30.0%) | 18 (25.7%) | 0.71 | 5 (25%) | 0.72 | 6 (14.6%) | 38 (31.7%) | 0.03 |
| Disagree | 10 (6.3%) | 3 (4.3%) | 5 (7.1%) | 2 (10%) | 1 (2.4%) | 9 (7.5%) | |||
| Q6. Able to Make Informed Reproductive Planning or Care for Other Family Members | |||||||||
| Agree | 121 (75.6%) | 51 (72.9%) | 57 (81.4%) | 13 (65.0%) | 33 (80.5%) | 88 (73.3%) | |||
| Neutral | 34 (21.3%) | 17 (24.3%) | 11 (15.7%) | 0.43 | 6 (30.0%) | 0.33 | 7 (17.1%) | 27 (22.5%) | 0.81 |
| Disagree | 5 (3.1%) | 2 (2.9%) | 2 (2.9%) | 1 (5%) | 1 (2.4%) | 4 (3.3%) | |||
| Q7. Benefit to Child | |||||||||
| Agree | 121 (75.6%) | 50 (71.4%) | 58 (82.9%) | 13 (65%) | 37 (90.2%) | 84 (70.0%) | |||
| Neutral | 35 (21.9%) | 19 (27.1%) | 9 (12.9%) | 0.06 | 7 (35%) | 0.30 | 4 (9.8%) | 31 (25.8%) | 0.03 |
| Disagree | 4 (2.5%) | 1 (1.4%) | 3 (4.3%) | – | – | 4 (3.3%) | |||
| Q8. Benefit to Parent | |||||||||
| Agree | 112 (70%) | 47 (67.1%) | 53 (75.7%) | 12 (60%) | 34 (82.9%) | 78 (65.0%) | |||
| Neutral | 45 (28.1%) | 22 (31.4%) | 15 (21.4%) | 0.43 | 8 (40%) | 0.53 | 7 (17.1%) | 38 (31.7%) | 0.10 |
| Disagree | 3 (1.9%) | 1 (1.4%) | 2 (2.9%) | – | – | 3 (2.5%) | |||
| Q9. Harm to Child | |||||||||
| Agree | 3 (1.9%) | 3 (4.2%) | – | – | 1 (2.4%) | 2 (1.7%) | |||
| Neutral | – | – | – | 0.25 | – | 1 | – | – | |
| Disagree | 157 (97.5%) | 67 (94.4%) | 70 (100%) | 20 (100%) | 40 (97.6%) | 117 (97.5%) | |||
| Q10. Harm to Parent | |||||||||
| Agree | 3 (1.9%) | 2 (2.9%) | 1 (1.4%) | – | 1 (2.4%) | 2 (1.7%) | |||
| Neutral | 6 (3.8%) | 4 (5.7%) | 2 (2.9%) | 0.67 | – | 1 | 4 (9.8%) | 2 (1.7%) | 0.04 |
| Disagree | 150 (94.3%) | 64 (91.4%) | 66 (95.7%) | 20 (100%) | 36 (87.8%) | 114 (95.0% | |||