Table 3.

Participant preferences when seeking permission for sharing genomics data when patient is no longer able

	Total N (%)
Do you think someone else should be able to give permission for researchers to access your anonymous genomic data from medical records if you are no longer able? (N = 1491, 99.80%)
No, only I can give permission	353 (23.7)
No, data freely available	496 (33.3)
Yes	642 (43.1)
If Yes, who would you prefer to give permission for your anonymous genomic data to be used in research on your behalf? (you can select multiple answers) (N = 642)
Family member	392 (61.1)
Nominated legal respresentative	294 (45.8)
Doctor	125 (19.5)
Human Research Ethics Committee (HREC)	121 (18.9)
Data governance	61 (9.5)