Table 6.
Summary of identified themes from open text box responses of participant concerns
| Themes of concerns (N = 247) | N (%)a |
|---|---|
| Data security | 55 (22.3) |
| Commercial use or gains | 33 (13.4) |
| Autonomy of choice | 27 (10.9) |
| Consent | 25 (10.1) |
| Implications for self | 20 (8.1) |
| Personal ethics on research type | 18 (7.3) |
| Privacy | 16 (6.5) |
| Access | 12 (4.9) |
| Trust | 11 (4.5) |
| Misuse | 10 (4.1) |
| Family implications | 9 (3.6) |
| Data management | 7 (2.8) |
| Interest in area of research | 5 (2.0) |
| Questionnaire comment | 5 (2.0) |
| Objection to sharing | 4 (1.6) |
| Positive response to sharing | 35 (14.2) |
a326 identified themes of concern identified from free-text comments of 247 respondents. Percentage calculated from number of participants that provided a text box response to Q14 (N = 247)