Table 1.
Socio-demographic characteristics of the total participants
| Variables | Frequency (%) |
|---|---|
| Types of rare diseases | |
| Patent ductus arteriosus | 40 (6.1) |
| Infantile agranulocytosis | 67 (10.3) |
| Autoimmune thrombocytopenia | 120 (18.4) |
| Polysyndactyly | 66 (10.1) |
| Hirschsprung disease | 118 (18.1) |
| Cleft lip and palate | 51 (7.8) |
| Tetralogy of fallot | 56 (8.6) |
| Myasthenia gravis | 42 (6.5) |
| Guillain–barre syndrome | 33 (5.1) |
| Glycogen storage disease | 30 (4.6) |
| Langerhans cell histiocytosis | 28 (4.3) |
| Gender | |
| Male | 373 (57.3) |
| Female | 278 (42.7) |
| Age group | |
| 2–4 year | 310 (47.6) |
| 5–7 year | 220 (33.8) |
| 8–12 year | 103 (15.8) |
| 13–18 year | 18 (2.8) |
| Household registration place | |
| Hangzhou | 350 (53.8) |
| Other cities | 301 (46.2) |
| Household type | |
| Urban areas | 474 (72.8) |
| Rural areas | 177 (27.2) |
| Family monthly income per capita | |
| < ¥5000 | 288 (44.2) |
| ¥5000–¥10,000 | 259 (39.8) |
| > ¥10,000 | 104 (16.0) |
| Total | 651 (100) |