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. 2020 Nov 23;18:372. doi: 10.1186/s12955-020-01572-0

Table 2.

Comparisons of PedsQL scores reported by parents

Variables Physical functioning Emotional functioning Social functioning School functioning Psychosocial health Total
Types of rare diseases
 Patent ductus arteriosus 65.86 ± 8.88 84.38 ± 8.18 87.75 ± 8.91 88.88 ± 8.95 87.00 ± 6.16 79.65 ± 5.46
 Infantile agranulocytosis 97.01 ± 3.86 94.93 ± 6.18 97.76 ± 5.02 93.13 ± 9.8 95.27 ± 4.55 95.88 ± 3.48
 Autoimmune thrombocytopenia 73.33 ± 4.72 73.04 ± 6.16 75.75 ± 3.47 62.25 ± 7.21 70.35 ± 3.81 71.39 ± 3.27
 Polysyndactyly 90.39 ± 9.76 91.59 ± 9.49 94.09 ± 7.99 91.82 ± 9.27 92.50 ± 6.78 91.77 ± 6.35
 Hirschsprung disease 74.84 ± 10.44 78.56 ± 8.80 77.84 ± 10.16 74.28 ± 10.38 76.89 ± 7.20 76.18 ± 6.92
 Cleft lip and palate 99.02 ± 2.38 96.47 ± 6.35 92.75 ± 11.42 95.49 ± 7.09 94.9 ± 6.160 96.33 ± 4.22
 Tetralogy of fallot 72.38 ± 11.8 80.54 ± 10.77 84.38 ± 11.64 77.41 ± 9.72 80.77 ± 8.72 77.85 ± 8.90
 Myasthenia gravis 96.58 ± 4.72 94.29 ± 5.90 98.69 ± 3.83 94.05 ± 7.90 95.67 ± 3.97 95.99 ± 3.31
 Guillain–barre syndrome 74.34 ± 10.39 86.21 ± 8.48 96.52 ± 5.23 92.88 ± 4.68 91.87 ± 3.25 85.77 ± 4.56
 Glycogen storage disease 76.15 ± 6.69 85.50 ± 9.04 90.33 ± 6.81 84.00 ± 8.14 86.61 ± 4.58 82.97 ± 4.13
 Langerhans cell histiocytosis 73.10 ± 10.74 79.29 ± 11.44 90.89 ± 8.50 69.82 ± 8.44 80.00 ± 5.72 77.60 ± 5.15
χ2 400.95* 338.69* 371.83* 430.23* 471.05* 483.00*
P < 0.001 < 0.001 < 0.001 < 0.001 < 0.001 < 0.001
Sex
 Male 79.41 ± 13.45 83.67 ± 11.24 86.42 ± 11.63 80.44 ± 14.72 83.51 ± 10.86 82.08 ± 10.51
 Female 82.94 ± 13.65 84.98 ± 11.85 87.59 ± 11.77 81.94 ± 15 84.84 ± 11.25 84.18 ± 11.12
t − 3.29 − 1.44 − 1.26 − 1.28 − 1.52 − 2.43
P 0.001 0.151 0.207 0.202 0.130 0.015
Age group
 2–4 year 81.99 ± 14.39 85.45 ± 11.5 86.87 ± 12.43 83.92 ± 13.81 85.41 ± 10.78 84.22 ± 10.98
 5–7 year 80.24 ± 13.08 83.64 ± 11.87 87.11 ± 10.86 79.93 ± 15.59 83.56 ± 11.35 82.41 ± 10.85
 8–12 year 79.58 ± 12.63 81.65 ± 10.72 85.53 ± 11.18 74.76 ± 14.41 80.65 ± 10.73 80.28 ± 10.19
 13–18 year 78.30 ± 11.96 85.28 ± 9.31 93.33 ± 9.70 82.50 ± 13.2 87.04 ± 9.07 84.00 ± 8.03
F (χ2) 3.78* 3.16 2.32 32.11* 5.53 13.36*
P 0.287 0.024 0.074 < 0.001 0.001 0.004
Household registration place
 Hangzhou 85.24 ± 13.48 86.43 ± 11.96 89.49 ± 11.04 84.14 ± 14.58 86.69 ± 11.08 86.18 ± 11.13
Other cities 75.88 ± 12.01 81.68 ± 10.42 83.94 ± 11.74 77.52 ± 14.38 81.05 ± 10.2 79.25 ± 9.14
t 9.37 5.42 6.21 5.81 6.72 8.73
P < 0.001 < 0.001 < 0.001 < 0.001 < 0.001 < 0.001
Household types
Urban areas 81.96 ± 13.72 84.66 ± 11.59 87.28 ± 11.82 82.23 ± 14.56 84.72 ± 10.95 83.76 ± 10.89
Rural areas 78.11 ± 13.06 83.08 ± 11.27 85.96 ± 11.33 78.02 ± 15.22 82.35 ± 11.12 80.88 ± 10.35
t 3.31 1.56 1.28 3.24 2.45 3.05
P 0.001 0.119 0.201 0.001 0.015 0.002
Family monthly income per capita
 < ¥5000 79.42 ± 13.79 83.44 ± 10.95 86.46 ± 11.69 81.77 ± 13.55 83.89 ± 10.32 82.33 ± 10.26
 < ¥5000–¥10,000 79.72 ± 12.82 83.53 ± 11.78 85.6 ± 11.69 78.71 ± 15.69 82.61 ± 11.48 81.61 ± 10.74
 > ¥10,000 88.04 ± 13.08 88.17 ± 11.68 91.49 ± 10.68 85.1 ± 15.18 88.25 ± 10.91 88.18 ± 11.08
F (χ2) 17.81 14.352* 20.343 15.451* 20.405* 15.26
P < 0.001 0.001 < 0.001 < 0.001 < 0.001 < 0.001

*χ2 of Kruskal–Wallis H test