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DYAD characteristics
| Patients (n = 28) | Caregivers (n = 28) | |||
|---|---|---|---|---|
| n | % | n | % | |
| Sex | ||||
| Male | 19 | 67.9 | 9 | 32.1 |
| Female | 9 | 32.1 | 19 | 67.9 |
| Age (years) at first interview | ||||
| Mean | 61.8 | 60.6 | ||
| Standard deviation | 8.8 | 8.4 | ||
| Relationship to the patient | ||||
| Spouse/partner | 28 | 28 | ||
| Live with patient | ||||
| Yes | – | 28 | 100 | |
| Site of onset | ||||
| Bulbar | 7 | 25.0 | – | |
| Spinal | 20 | 71.4 | – | |
| Respiratory | 1 | 3.6 | – | |
| Time from Diagnosis to first Interview (months) | ||||
| Mean | 23.2 | – | ||
| Standard deviation | 28.8 | – | ||
| Median | 17.5 | – | ||
| Range | (1.5–136.2) | – | ||
