Table 3.
Patient characteristics
| Patient | ||||||
|---|---|---|---|---|---|---|
| Interview 1 | Interview 2 | Interview 3 | ||||
| MITOS stage | n | % | n | % | n | % |
| 0 | 21 | 75.0 | 18 | 64.3 | 13 | 46.4 |
| 1 | 6 | 21.4 | 8 | 28.6 | 11 | 39.3 |
| 2 | – | – | 2 | 7.1 | 2 | 7.1 |
| 3 | – | – | – | – | – | – |
| Not available | 1 | 3.6 | – | – | 2 | 7.1 |
| Cognition (ECAS) | ||||||
| Normal | 21 | 75.0 | 20 | 71.4 | 18 | 64.3 |
| Non-normal | 6 | 21.4 | 7 | 25.0 | 9 | 32.1 |
| Not Available | 1 | 3.6 | 1 | 3.6 | 1 | 3.6 |
| Behaviour (BBI) | ||||||
| Normal | 18 | 64.3 | 16 | 57.1 | 15 | 53.6 |
| Non-normal | 8 | 28.6 | 10 | 35.7 | 11 | 39.3 |
| Not Available | 2 | 7.1 | 2 | 7.1 | 2 | 7.1 |
| HADS DISTRESS | ||||||
| Mean | 10.8 | 12.3 | 11.4 | |||
| Standard deviation | 7.0 | 6.6 | 7.9 | |||
| Median | 9.5 | 10.5 | 10.5 | |||
| Range | (0–27) | (3–26) | (0–30) | |||
| % Above Cut-off | 11 | 39% | 12 | 43% | 13 | 46% |
| SeiQoL Index (SIS) | ||||||
| Mean | 77.5 | 76.3 | 77.7 | |||
| Standard deviation | 14.9 | 19.1 | 13.1 | |||
| Median | 83.1 | 77.1 | 80.6 | |||
| IQR | (68.72–86.99) | (70.56–90.66) | (68.02–89.04) | |||
| Range | (23.68–95.8) | (6.75–96.99) | (44.59–95.38) | |||
MITOS Milano-Torino Staging
ECAS Edinburgh Cognitive and Behavioural ALS Screen
BBI Beaumont Behavioural Inventory
HADS Hospital Anxiety and Depression Scale
SeiQoL Schedule for Individual Quality of Life