Table 5.

Meaningful Change in SD NRS

Illustrative Quotes
Assessment	Adults	Adolescents	Adults	Adolescents
Smallest Improvement with which Participants Would Be Satisfied or Content	N = 19	N = 9	… any improvement is good …	I feel like if I was a 5, if I went down that would be cool, but getting to a 5 would be—I mean it’s like any improvement would be meaningful.
1 point	11%	22%
2 points	32%	44%
3 points	26%	22%
4 points	16%	–
5 points	11%	–
6 points	–	11%
8 points	5%	–
Level of Improvement that Would Be Meaningful	N = 17	N = 10	[An improvement of one point]: Maybe I might sleep a little bit better or maybe I have sleep for more hours without dealing with a medication. [An improvement of two points] means I could go to sleep better and that means I don’t have to wake up in the middle of the night knowing that I’m scratching myself or that means I can put makeup on, and it will cover my face.	I just feel like the one-point difference is kind of understandable for just a weekly basis. [An improvement of three points] I think I would definitely recognize that, because, I mean, like it’s just a big change from waking up a couple times to being awake for the duration of the night.
1 point	76%	80%
2 points	18%	10%
3 points	6%	10%
Participants’ ratings for “No or Minimal sleep disturbance	N = 18	N = 10	Well, if my sleep was like a one, I would say that’s still pretty good, that the itch is not there and if I wake up it’s not going to keep me up, it won’t keep me up.	I’m sleeping at a one or a two, and just being to sleep well because that’s like a basic thing that everybody else can do. It’s just something that I wish I had the privilege to be able to just sleep through the night without waking up from my neck hurts or thinking about how my skin is bothering. I kind of just wish I could sleep like a normal person.
0	11%	10%
1	29%	30%
2	41%	40%
3	24%	10%
4	–	10%

Abbreviation: SD NRS sleep disturbance numerical rating scale