Table 3.
Subcategory | Elaborations |
---|---|
Category/ Theme 1: Innate Ring | |
1. Perception of life and death | a) Confrontation with own mortality |
b) Conception of a good death impacting end-of-life care | |
c) Death of patient perceived to be a personal failure | |
d) Death of patient not perceived to be a personal failure | |
e) Conflict about prolonging life as it prolonged suffering | |
f) One has a right to die | |
Category/ Theme 2: Individual Ring | |
1. Ability to make sense of things | Impaired end-of-life decision making: |
a) Personal factors | |
b) Patient factors | |
c) Institutional factors | |
d) Societal culture | |
Doubt: | |
e) Doubt in end-of-life decision making | |
f) Doubt about assessment of patient’s prognosis | |
g) Doubt due to uncertainties in patient’s trajectories | |
h) Internal conflict when balancing care goals | |
i) Internal conflict when managing own expectations | |
j) Dilemmas about active treatment versus palliative intention | |
2. Ability to communicate and relate | a) Loss of ability to communicate and relate to patients |
b) Poor communication skills | |
c) Difficulty and discomfort when broaching topic of death to patients | |
d) Attempts to avoid discussion of death in general | |
e) Improvement in communication skills | |
f) Confidence in ability to navigate difficult conversations | |
g) Motivated to further improve communication skills | |
3. Ability to express feelings | a) Emotional detachment |
b) Emotions perceived as hinderance to job | |
Apprehension/Distress: | |
c) From end-of-life care | |
d) From communication with family | |
e) From belief that futile treatment prolonged dying process | |
f) From possibility of litigation | |
g) Fear due to unintentional transference to own family | |
h) Emotional involvement being considered as valuable | |
i) Satisfaction in involvement in patient’s end-of-life care | |
4. Acquired ability | a) Lacking knowledge about end-of-life |
b) Inadequate opportunities for end-of-life care training | |
c) Doubt and lack of confidence in clinical skills | |
d) Testing of practical skills such as treatment withdrawal techniques | |
e) End-of-life decision making differing with years of experience | |
f) Acquisition of new skills with experience | |
g) Adequate end-of-life care training | |
5. Beliefs | Personal Beliefs |
a) Conflicting beliefs resulting in distress | |
b) Dilemmas about the balancing of opposing values | |
c) Personal beliefs reflected in end-of-life practices and communication | |
Ethical dilemmas | |
d) Differences in ethical opinion surrounding treatment withholding and withdrawal | |
e) Futile treatment | |
f) Lack of advanced directives and families’ aggressive care requests causing moral distress | |
Religious views | |
g) Influenced end-of-life discussion and decision making | |
h) Did not influence end-of-life practices | |
6. Perceived Role as a doctor | a) To care for dying patients |
b) Perceived duty to prolong life causing moral distress | |
c) Death of patient perceived to be a professional failure | |
d) Death of patient not perceived to be a professional failure | |
e) Uncertainty about role in end-of-life discussions resulting in no/late end-of-life discussion | |
f) Paternalistic approach to decision making | |
g) Perceived professional duty to collaborate and care for needs of patient’s family | |
h) Professional satisfaction from caring for dying patients | |
i) Satisfaction upon reconciling dual role of saving lives and managing death well | |
j) Emotions perceived as hinderance to role as doctor | |
Category/ Theme 3: Relational Ring | |
1. Family | a) Fear due to unintentional transference to physician’s own family members |
Category/ Theme 4: Societal Ring | |
1. Physical environment | a) Availability of resources in different countries influencing end-of-life care |
b) Intensive care unit environment as not conducive for end-of-life discussions | |
Intensive care unit as an inappropriate place to die | |
c) Lack of privacy | |
d) Focus of care not allowing for palliative care | |
Suitability for palliative care teaching | |
e) Not suitable | |
f) Suitable | |
2. Cultural norms | a) Physician’s end-of-life care attitudes, behaviors and decisions privy to cultural norms |
b) Death and dying perceived as a “taboo” topic in certain cultures | |
c) Need for end-of-life care to be sensitive to different cultures encountered | |
3. Workplace cultural norms | a) Influencing views on death, end-of-life care attitudes, behavior and decision making |
4. Societal expectations | a) Societal expectations promoting survival and death prevention |
b) Perception of treatment withdrawal as taking the life of one’s patient affecting physician’s end-of-life decision making | |
5. Legal standard | a) Fear of legal challenge affecting end-of-life care leading to defensive practice |
b) Unclear laws surrounding end-of-life practices breeding legal uncertainty | |
c) Adherence to decisions despite perceived potential legal kickback | |
6. Professional Relationships | Patients |
a) Challenges faced during end-of-life communication | |
b) Managing expectations of patients | |
c) Inspiring interactions with patients | |
Patient’s family | |
d) Conflict between physician and patient’s family | |
e) Effects of conflict on relationship | |
f) Family members concerned for patient’s possible pain and distress | |
g) Managing expectations of patient’s family members | |
h) Family’s distress after end-of-life care discussion | |
i) Empowering interactions with patient’s family members | |
j) Factors affecting communication with family members | |
k) Creation of soft landing when informing family about death | |
l) Perception of intensive care unit as not conducive for palliative care discussions | |
Nurses & intensive care unit team | |
m) Support from other intensive care unit physicians to help manage end-of-life decisions | |
Physicians from other specialties | |
n) Challenges with interaction | |
o) Lack of understanding of one another’s role | |
7. Professional Standards | a) Professional expectation for doctors to not cause death or harm to patients |
b) Responsibility to decide on withdrawal of treatment went against physician’s perceived professional standards | |
Category/ Theme 5: Conflicts in providing end-of-life care | |
1. Interpretation of duty of the physician |
a) Professional expectation that doctors should not cause death or harm to patients b) Responsibility of treatment withdrawal decision going against physician’s perceived professional standards c) Physician’s end-of-life care attitudes, behaviors and decisions d) Need for end-of-life care to be sensitive to different cultured encountered |
2.Behavior of the physician |
a) Doubts in self, conflicts in decision making b) Emotional and psychological overlay c) Internal conflict between beliefs and duties |
3.Behavior of others |
e) Conflict with intensive care unit nurses f) Challenges with interactions with other professionals g) Perception that nurses do not grasp the complexity of end-of-life decision making |
4.Professional Standards |
h) Conflict between respect for cultural norms and general practice i) Conflict between team members on how to interpret way to proceed in grey situations |
Category/ Theme 6: Coping strategies | |
1. Personal strategies |
a) Effective communication to strengthen decision making position Confidence: b) Gaining confidence through experience c) Gaining confidence with end-of-life discussions d) Taking breaks from the intensive care unit or practicing on other sites |
2. Strategies with patients | a) Collaboration with patient to reduce moral burden of decision making |
3. Strategies with patient’s family |
a) Creation of soft landing when informing patient’s family about death b) Collaboration with patient’s family to reduce moral burden of decision making |
4. Strategies with colleagues |
a) Conflict management interventions b) Emotional and experiential sharing of caring for dying patients c) Collaborations with interdisciplinary team members |