Table 1.
Demographic and clinical data of participating patients of cognitive interviews (n = 10) and focus groups (n = 24) (SD = standard deviation)
|
Phase 1: Patients of cognitive interviews (n = 10) |
Phase 2: Patients of focus groups (n = 24) |
|
|---|---|---|
| n (%) | n (%) | |
| Age (in years) | ||
| Mean (SD) | 49.0 (11.3) | 60.7 (11.8) |
| Range | 31‐64 | 29‐74 |
| Gender | ||
| Female | 5 (50.0) | 13 (54.2) |
| Male | 5 (50.0) | 11 (45.8) |
| Mother tongue | ||
| German | 9 (90.0) | 23 (95.8) |
| Other | 1 (10.0) | 1 (4.2) |
| Education a | ||
| Low | 2 (20.0) | 3 (12.5) |
| Medium | 3 (30.0) | 6 (25.0) |
| High | 5 (50.0) | 15 (62.5) |
| Current Profession b | ||
| Employed | 5 (50.0) | 11 (45.8) |
| Retired | 3 (30.0) | 11 (45.8) |
| Homemaker | 1 (10.0) | 1 (4.2) |
| Student/Trainee | 1 (10.0) | 0 (0.0) |
| Sick leave | 0 (0.0) | 2 (8.3) |
| Cancer entity b | ||
| Leukaemia/Lymphoma/Myeloma | 3 (30.0) | 7 (29.2) |
| Prostate cancer | 0 (0.0) | 5 (20.8) |
| Breast cancer | 2 (20.0) | 4 (16.7) |
| Bladder cancer | 0 (0.0) | 2 (8.3) |
| GIST c | 0 (0.0) | 2 (8.3) |
| Testicular cancer | 0 (0.0) | 2 (8.3) |
| Ovarian cancer | 2 (20.0) | 1 (4.2) |
| Colorectal cancer | 1 (10.0) | 0 (0.0) |
| Sarcoma | 1 (10.0) | 1 (4.2) |
| Squamous cell carcinoma | 1 (10.0) | 0 (0.0) |
| Years of disease | ||
| Mean (SD) | 4.8 (3.55) | 4.99 (4.8) |
| Range in years | 1‐11 | 0.42‐19.25 |
| Health literacy d | ||
| Inadequate | 1 (10.0) | 7 (29.2) |
| Moderate | 4 (40.0) | 10 (41.7) |
| Adequate | 5 (50.0) | 7 (29.2) |
a
low = <10 school years, medium = 10‐13 school years, high = >13 school years.
b
more than one answer possible.
c
gastrointestinal stromal tumour.
d
health literacy was assessed by HLS‐EU‐Q16, according to the sum score, participants can be divided into three groups: 0 to 8 = inadequate health literacy, 9 to 12 = moderate health literacy, 13 to 16 = adequate health literacy