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. 2020 Nov 28;115:107658. doi: 10.1016/j.yebeh.2020.107658

Table 3.

Overview of survey responses from BAME participants, which relate to risk factors correlated with of increased epilepsy morbidity and mortality. Modifiable risk factors are based on guidelines from National Institute for Health and Care Excellence (NICE) and the SUDEP and Seizure Safety Checklist [27], [37]. The discussion of risk factors will depend on diagnosis and demographics, which may partially account for why risk discussion is low in the <18 years of age category. *Expect fewer risk factors to be discussed in people under 18 years of age (i.e. driving, employment) **Excluding pregnancy and contraception risk factors in male participants.

Risk Factors
Respondents by ethnicity Gender Age Epilepsy consultations a year
<1 = increased risk
Injuries (in 12 months)
Yes = increased risk
Forgetfulness taking ASMs
Yes/sometimes = increased risk
During COVID-19
Discussion of risk factors (in 12 months)
Fewer risk factors discussed = increase risk
Difficulty taking ASMs
Changes to health
Difficulty accessing epilepsy services
Yes = increased risk
Asian/Asian British (n = 3) Female 50–59 2 No No No No No 4/16
Male <18 6+ No No No No Yes 2/16*
Female 40–49 6+ Yes No No No No 3/16
Black/African/Caribbean/Black British (n = 2) Female 18–29 <1 No Sometimes No Yes Yes 5/16
Male 30–39 1 Yes No No No No 4/14**
Latinx/British Latinx (n = 3) Female 30–39 2 Yes Sometimes Yes Yes Yes 5/16
Female <18 4 Yes No data Yes Yes Yes 0/16*
Male 40–49 1 No Sometimes No Unsure No 0/14**