Table 5.

Overview of survey responses from participants who were pregnant, which relate to risk factors correlated with of increased epilepsy morbidity and mortality. Modifiable risk factors based on guidelines listed in Table 2 are shown. Three women in this sample did not receive NICE standards of care, which stipulate that people with epilepsy should see a specialist at least once a year. Injuries, ASM nonconcordance, barriers to healthcare and changes in health are concerning for the safety of the mother and fetus, and correlate with high levels of maternal mortality in people with epilepsy [38]. ASM = anti-seizure medication.

		Risk Factors
ID	Comorbid conditions	Epilepsy consultations in a year <1 = increased risk	Injuries (in 12 months) Yes = increased risk	Forgetfulness taking ASMs Yes/sometimes = increased risk	During COVID-19			Discussion of risk factors (past 12 months) Fewer risk factors discussed = increased risk
					Difficulty taking ASMs	Changes to health	Difficulty accessing epilepsy services
					Yes = increased risk
1	None	<1	No	Sometimes	Yes	Yes	No*	0/16
2	None	<1	No	Never	No	Yes	Yes	3/16
3	Dyspraxia	<1	No	Sometimes	Yes	No	No	2/16
4	Memory difficulties	3	Yes	Sometimes	No	No	No	7/16
5	None	1	No	Never	No	No	No	2/16