Table 4.

UK Black, Asian and minority ethnic participant qualitative analysis themes and illustrative quotes.

Theme	Representative Quote
Burden of disease within family	“Very healthy but slight amount of protein in urine so not able to donate.” (Male, 50–59 years, Asian, Hindu, Living-donor kidney transplant (LDKT) “They all have slight renal problem” (Female, 50–59 years, Black, Deceased-donor kidney transplant (DDKT) “Hereditary illness in the family” (Male, 50–59 years, Asian, DDKT) “Mother and 2 sibling have same condition as mine (1 sister & 1 brother).” (Male, 30–38 years, Black, Christian, DDKT)
Differing religious interpretations	“Their religion/faith forbids them to donate 1. thought they were Christians like me. 2. our culture forbids them to donate… 3. some forbid blood transfusion and the unbelievable reasons for that.” (Female, 60–69 years, Black, LDKT) “Superstition/religion (distorted beliefs). Myth.” (Female, 50–59 years, Black, Christian, DDKT) “Their religion would not allow them to donate a kidney.” (Female, 40–49 years, Black, Christian, LDKT) “Religious/cultural…” (Male, 50–59 years, Asian, Hindu, LDKT)
Geographical concerns	“All of my family apart from my spouse live in Ethiopia and other countries and would not have access to healthcare or the means to come to the UK” (Male, 40–49 years, Black, Muslim, LDKT) “All my people are in Nigeria, some of them, lack of transport to help them home is the problem some of them have.” (Male, 70–79 years, Black, Christian, DDKT) “I had a word with my mum, wife and my son but they couldn’t come to the UK due to financial and other reasons.” (Male, 40–49 years, Black, Christian, DDKT)
A culture of silence	“I did not ask for a donation so do not have a reason.” (Female, 60–69 years, Asian, Sikh, DDKT) “I would not ask my cousins” (Female, 30–39 years, Asian, Muslim, LDKT) “Other 3 cousins from my mother’s half sister do not have PKD but they would not offer, they didn’t before, I would certainly not ask.” (Female, 60–69 years, Other ethnic group, No religion, LDKT) “Are unaware of my current condition.” (Male, 20–29 years, Asian, Hindu, LDKT)