Table 3. Research Prioritisation Workshop café top 10 priorities.
| Café: Top Priorities
(i.e. based on top three subthemes within each cafe) |
Importance
assigned to each theme |
Euro | ||
|---|---|---|---|---|
| n | % | n | % | |
| Data sharing
and integration (Integrated and Palliative Care) |
24 | 21 | 945 | 44 |
| Co-designing
services (Integrated and Palliative Care) |
24 | 21 | 365 | 17 |
| Psychosocial impact
(Living with Rare Disease) |
19 | 18 | 590 | 22 |
| Support at the time
of diagnosis (Route to Diagnosis) |
19 | 16 | 170 | 6 |
| Transition services
(Living with Rare Disease) |
16 | 15 | 425 | 16 |
| Economic impact
(Living with Rare Disease) |
16 | 15 | 245 | 9 |
| Community-based
services, treatment, multi-morbidity (Integrated and Palliative Care) |
15 | 13 | 230 | 11 |
| Evidence-based
models of integrated care (Integrated and Palliative Care) |
15 | 13 | 180 | 8 |
| Role of infrastructure
in diagnosis (Route to Diagnosis) |
15 | 13 | 525 | 18 |
| Psychosocial impact
of a diagnosis (Route to Diagnosis) |
14 | 12 | 570 | 20 |